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Objective(s)
To review existing patient- and/or caregiver-report measures of rehabilitation utilization
following acquired brain injury (ABI).
Data Sources
Medline, APA PsycInfo, Embase, and CINAHL were searched in 9/2021. Additional search
methods (e.g. internet search; contacting corresponding author) were employed if measures
referenced were not included in the manuscript/appendices.
Study Selection
Included articles were empirical research or a research protocol, available in English,
and described patient- and/or caregiver-report of rehabilitation utilization post-ABI
via quantitative or qualitative methods. Studies using an unstructured qualitative
approach were excluded. Two reviewers independently screened 4,703 records using DistillerSR
software. Discrepancies were resolved by team adjudication, resulting in 128 included
articles.
Data Extraction
Data Extraction was piloted by all members of the study team with high levels of agreement
(k=.94). Data were extracted by a single member and recurrent team meetings were held
to review progress and seek guidance as needed. Data included: characteristics of
the measures (e.g. patient- vs. caregiver report, recall period), domains of rehabilitation
utilization, and psychometric properties. Data were extracted from articles describing
the use of the measures and from the measures directly when they were able to be accessed.
Data Synthesis
One-hundred and thirty-six unique measures were identified from 65 quantitative, 60
qualitative, and 3 psychometric studies. Psychometric properties were reported for
only three measures, all of which focused on overall satisfaction. Most studies used
unvalidated measures. The most frequent domains included: types of therapies used
(e.g. functional, behavioral health, community and academic reintegration) and qualitative
aspects (e.g. satisfaction, adequacy). Recall periods ranged from 1 month to “since
the ABI event” or focused on current utilization only. Of measures that could be accessed
(n=57), many included a limited checklist of types of services for patients/caregivers
to complete. Very few measures assessed setting, frequency, intensity, or duration.
Conclusions
Existing measures are unvalidated and limited in scope. Development and validation
of a comprehensive instrument measuring rehabilitation utilization is a necessary
next step to advance rehabilitation research following ABI.
Author(s) Disclosures
Authors report no disclosures.
Key Words
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© 2022 Published by Elsevier Inc.
