This paper is only available as a PDF. To read, Please Download here.
1)To identify and collate information resources for young people with stroke (YPwS) and evidence-based self-managements programs and, 2)To identify gaps in age-specific resources available for YPwS living in the community.
Databases searched included six databases. We also used backward citation searches and reference checking methods to identify additional resources. We identified 54 guidelines, one consensus study, 10 narrative reviews, 3 scoping reviews and 11 systematic reviews potentially relevant to YPwS. We conducted a comprehensive web search using Google applying the keyword strings ‘health, wellness literacy or education’. We extracted the first 100 webpage links.
YPwS(18–65 years) living in the community and their caregivers were included. All study designs were included, except reviews. Titles, abstracts, full-text articles and resources content identified by the search were independently assessed by two reviewers for eligibility. From database searches, 5786 titles and abstracts were screened after duplicates removal(n =292). 619 full-text studies were assessed for eligibility, of which 18 were included. We also screened the reference lists of guidelines identified(n=3700 total references), of which one study was included. Additionally, we screened the reference lists of reviews identified(n=1067 total references) and included three articles. From the web-search, 91 webpage contents were assessed for eligibility, of which 15 sites were included. We received 46 information resources from 22 organizations, of which 12 resources targeted YPwS.
Data Extraction was carried out independently by the authors and included data source, organization, country of origin, resource type, type of needs addressed, information/program contents, target population.
The information resources included pamphlets, radio interviews, stroke support groups, self-management programs, smartphone applications and websites, mostly from high resource settings and in English language. These addressed the following needs of YPwS: age-specific stroke information, driving, return to work, aphasia, return to sports, secondary prevention and sexuality.
There are limited resources that comprehensively the specific needs of YPwS. More effort is required for the development and dissemination of information resources for YPwS.
No conflicts of interest.
To read this article in full you will need to make a payment
Purchase one-time access:Academic & Personal: 24 hour online accessCorporate R&D Professionals: 24 hour online access
One-time access price info
- For academic or personal research use, select 'Academic and Personal'
- For corporate R&D use, select 'Corporate R&D Professionals'
Subscribe:Subscribe to Archives of Physical Medicine and Rehabilitation
Already a print subscriber? Claim online access
Already an online subscriber? Sign in
Register: Create an account
Institutional Access: Sign in to ScienceDirect
© 2022 Published by Elsevier Inc.