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Objective(s)
1)To identify and collate information resources for young people with stroke (YPwS)
and evidence-based self-managements programs and, 2)To identify gaps in age-specific
resources available for YPwS living in the community.
Data Sources
Databases searched included six databases. We also used backward citation searches
and reference checking methods to identify additional resources. We identified 54
guidelines, one consensus study, 10 narrative reviews, 3 scoping reviews and 11 systematic
reviews potentially relevant to YPwS. We conducted a comprehensive web search using
Google applying the keyword strings ‘health, wellness literacy or education’. We extracted
the first 100 webpage links.
Study Selection
YPwS(18–65 years) living in the community and their caregivers were included. All
study designs were included, except reviews. Titles, abstracts, full-text articles
and resources content identified by the search were independently assessed by two
reviewers for eligibility. From database searches, 5786 titles and abstracts were
screened after duplicates removal(n =292). 619 full-text studies were assessed for
eligibility, of which 18 were included. We also screened the reference lists of guidelines
identified(n=3700 total references), of which one study was included. Additionally,
we screened the reference lists of reviews identified(n=1067 total references) and
included three articles. From the web-search, 91 webpage contents were assessed for
eligibility, of which 15 sites were included. We received 46 information resources
from 22 organizations, of which 12 resources targeted YPwS.
Data Extraction
Data Extraction was carried out independently by the authors and included data source,
organization, country of origin, resource type, type of needs addressed, information/program
contents, target population.
Data Synthesis
The information resources included pamphlets, radio interviews, stroke support groups,
self-management programs, smartphone applications and websites, mostly from high resource
settings and in English language. These addressed the following needs of YPwS: age-specific
stroke information, driving, return to work, aphasia, return to sports, secondary
prevention and sexuality.
Conclusions
There are limited resources that comprehensively the specific needs of YPwS. More
effort is required for the development and dissemination of information resources
for YPwS.
Author(s) Disclosures
No conflicts of interest.
Key Words
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© 2022 Published by Elsevier Inc.
