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Initial evidence for reliable and valid use of scores on the 8-item Econ-QOL short form to measure economic quality of life in caregivers of persons with traumatic brain injury

Published:August 06, 2022DOI:https://doi.org/10.1016/j.apmr.2022.07.015

      Abstract

      Objective

      To provide reliability and validity data to support the clinical utility of Econ-QOL scores in caregivers of civilians and service members/veterans (SMVs) with TBI.

      Design

      Cross-sectional survey study.

      Setting

      Three academic medical centers and a VA treatment facility.

      Participants

      376 caregivers of civilians (n=213) and SMVs (n=163) with TBI.

      Interventions

      N/A.

      Main Outcome Measures

      Econ-QOL and several patient-reported outcome measures (TBI-CareQOL Caregiver-Specific Anxiety and Caregiver Strain, PROMIS Sleep-related Impairment, Neuro-QoL Positive Affect and Well-being) and measures of financial status (self-reported income).

      Results

      Internal consistency reliability of the Econ-QOL short form scores were excellent (all Cronbach's alphas ≥0.92). There were no floor or ceiling effects for scores. There was evidence of convergent and discriminant validity, with the Econ-QOL scores having the strongest relationships with self-reported income (convergent validity evidence), and weak relationships with the other measures (discriminant validity evidence). Individuals with scores that were “below or possibly below” the poverty line (according to 2016 Federal Government poverty level thresholds) reported worse economic QOL relative to those individuals that were definitely above the poverty line, supporting known-groups validity.

      Conclusions

      This report establishes the clinical utility of scores on the Econ-QOL Short Form in caregivers of persons with TBI and provides evidence that it is valid and appropriate to use such scores not only in a variety of different disability populations (e.g., spinal cord injury, stroke) but also in caregivers.

      Key Words

      List of abbreviations:

      CAT (Computer Adaptive Test), ECON-QOL (The Economic Quality of Life Measure), HRQOL (Health-Related Quality of Life), PROMIS (Patient-Reported Outcomes Measurement Information System), Neuro-QoL (Neurological Quality of Life Measurement System), SMV (Service Member/Veteran), TBI (Traumatic Brain Injury), TBI-CareQOL (Traumatic Brain Injury Caregiver Quality of Life), VA (Veterans Affairs)
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