Abstract
Keywords
List of abbreviations:
CAT (computer adaptive test), EHR (electronic health record), KTA (Knowledge-to-Action Framework), NQF (National Quality Forum), PROM (patient-reported outcome measure), PROMIS (Patient-Reported Outcomes Measurement Information System), QOL (quality of life), SCI (spinal cord injury), SCI-QOL (Spinal Cord Injury-Quality of Life measurement system)Purchase one-time access:
Academic & Personal: 24 hour online accessCorporate R&D Professionals: 24 hour online accessOne-time access price info
- For academic or personal research use, select 'Academic and Personal'
- For corporate R&D use, select 'Corporate R&D Professionals'
Subscribe:
Subscribe to Archives of Physical Medicine and RehabilitationReferences
- Evidence-based practice in nursing & healthcare: a guide to best practice.Lippincott Williams & Wilkins, Philadelphia2011
- Evidence-based rehabilitation: a guide to practice.West DeptfordSlack Incorporated, 2008
- A conceptual framework to increase usability of outcome research for evidence-based practice.Am J Occup The. 2005; 59: 351-355
- (Introducing evidence-based policy and practice in public services)What works? Evidence-based policy and practice in public services.The Policy Press, Bristol, UK2000: 1-12
- Use of standardized outcome measures in physical therapist practice: perceptions and applications.Phys Ther. 2009; 89: 125-135
- Implementing patient-reported outcomes assessment in clinical practice: a review of the options and considerations.Qual Life Res. 2012; 21: 1305-1314
Centers for Medicare and Medicaid Services. Final IRF-PAI Version 4.0. Available at: https://www.cms.gov/files/document/final-irf-pai-version-40-effective-october-1-2020.pdf. Accessed January 24, 2020.
- The overlooked outcome measure for spinal cord injury: use of assistive devices.Front Neurol. 2019; 10: 272
- Consensus on core outcome measures of function are needed to progress our knowledge of 'best practice' exercise components for older people.Age Ageing. 2011; 40: 532-533
- The routine use of patient reported outcome measures in healthcare settings.Brit Med J. 2010; 340: c186
- Practitioner and organizational barriers to evidence-based practice of physical therapists for people with stroke.Phys Ther. 2007; 87: 1284-1303
- Promoting evidence-based practice: an organizational approach.J Nurs Manag. 2004; 12: 114-123
- Interventions for providers to promote a patient-centred approach in clinical consultations.Cochrane Database Syst Rev. 2001; 4CD003267
- Measuring quality of life in routine oncology practice improves communication and patient well-being: a randomized controlled trial.J Clin Oncol. 2004; 22: 714-724
- Reducing survey burden: feasibility and validity of PROMIS measures in multiple sclerosis.Mult Scler. 2014; 20: 1102-1111
- Development and initial evaluation of the spinal cord injury-functional index.Arch Phys Med Rehabil. 2012; 93: 1733-1750
- Developing a contemporary patient-reported outcomes measure for spinal cord injury.Arch Phys Med Rehabil. 2011; 92: S44-S51
- Linking clinical variables with health-related quality of life. A conceptual model of patient outcomes.JAMA. 1995; 273: 59-65
- Lost in knowledge translation: time for a map?.J Contin Educ Health Prof. 2006; 26: 13-24
- The Patient-Reported Outcomes Measurement Information System (PROMIS): progress of an NIH Roadmap cooperative group during its first two years.Med Care. 2007; 45: S3-11
- Developing the Patient-Reported Outcomes Measurement Information System (PROMIS).Med Care. 2007; 45: S1-S2
- Methodology for the development and calibration of the SCI-QOL item banks.J Spinal Cord Med. 2015; 38: 270-287
- Overview of the Spinal Cord Injury–Quality of Life (SCI-QOL) measurement system.J Spinal Cord Med. 2015; 38: 257-269
- Spinal cord injury-functional index: item banks to measure physical functioning in individuals with spinal cord injury.Arch Phys Med Rehabil. 2012; 93: 1722-1732
Aaronson NK, Elliott T, Greenhalgh J, et al. User's guide to implementing patient-reported outcomes assessment in clinical practice version 2. International Society of Quality of Life Research. Available at:https://www.isoqol.org/wp-content/uploads/2019/09/2015UsersGuide-Version2.pdf. Accessed December 19, 2020.
Chan EKH, Edwards TC, Haywood K, Mikles S, Newton L. Implementing patient-reported outcome measures in clinical practice: a companion guide to the ISOQOL user's guide version 1. International Society for Quality of Life Research. Available at:https://www.isoqol.org/wp-content/uploads/2019/09/ISOQOL-Companion-Guide-FINAL.pdf. Accessed July 15, 2021.
National Quality Forum. Patient-reported outcomes: approaches and challenges in selection and data collection - an environmental scan. National Quality Forum. Available at: https://www.qualityforum.org/Publications/2019/12/Patient-Reported_Outcomes_Environmental_Scan.aspx. Accessed January 20, 2020.
- Guide.in: Harrison MB van den Hoek J CAN-IMPLEMENT©: a guideline adaptation and implementation planning resource. Queen's University School of Nursing and Canadian Partnership Against Cancer, Kingston, Ontario, Canada2012
- Using the Knowledge to Action Framework in practice: a citation analysis and systematic review.Implement Sci. 2014; 9: 172
- Adapting clinical practice guidelines to local context and assessing barriers to their use.CMAJ. 2010; 182: E78-E84
- Guideline adaptation: an approach to enhance efficiency in guideline development and improve utilisation.BMJ Qual Saf. 2011; 20: 228-236
The ADAPTE Collaboration. The ADAPTE process: resource toolkit for guideline adaptation. Version 2.0. Available at:https://g-i-n.net/wp-content/uploads/2021/03/ADAPTE-Resource-toolkit-March-2010.pdf. Accessed July 15, 2021.
- Integrating Spinal Cord Injury-Quality of Life instruments into rehabilitation: implementation science to guide adoption of patient-reported outcome measures.J Spinal Cord Med. 2020 Jan 23; ([Epub ahead of print])
- Dynamic wait-listed designs for randomized trials: new designs for prevention of youth suicide.Clin Trials. 2006; 3: 259-271
- Effects of an implementation intervention to promote use of patient-reported outcome measures on clinicians' perceptions of evidence-based practice, implementation leadership, and team functioning.J Contin Educ Health Prof. 2019; 39: 103-111
Ehrlich-Jones L, Nitsch KP, Engel E, Grasz K, Graham ID, Heinemann AW. Development of an education resource to support the implementation of the Spinal Cord Injury-Quality of Life instruments in inpatient rehabilitation. Arch Phys Med Rehabil; in press.
Glinberg and Associates. NIH toolbox. Available at: https://apps.apple.com/us/app/nih-toolbox/id1002228307. Accessed December 6, 2020.
- Developing clinically relevant scoring standards for the SCI-QOL measurement system.Arch Phys Med Rehabil. 2018; 99: e65
- Response shift theory: important implications for measuring quality of life in people with disability.Arch Phys Med Rehabil. 2007; 88: 529-536
- Best care at lower cost: the path to continuously learning health care in America.The National Academies Press, Washington (DC)2013
Article info
Publication history
Footnotes
Supported by the Craig H. Neilsen Foundation's Psychosocial Rehabilitation portfolio's Implementing SCI-QOL into Clinical Practice to Enhance Patient Engagement, awarded to the Shirley Ryan AbilityLab.
Disclosures: Ian D. Graham is a Canadian Institutes of Health Research Foundation Grant Recipient (FDN grant no. 143237). The other authors have nothing to disclose.
This paper is part of a supplement from the American Congress of Rehabilitation Medicine.
