- •Assessing outcomes using common metrics facilitates cumulative science.
- •The Spinal Cord Injury–Functional Index (SCI-FI) measures physical function after injury.
- •Linked SCI-FI Basic Mobility measure to PROMIS.
- •Researchers can now compare injury-specific mobility scores with PROMIS.
Main Outcome Measures
List of abbreviations:CAT (computerized adaptive test), DIF (differential item functioning), IRT (item response theory), NIH (National Institutes of Health), PROM (patient-reported outcome measure), PROMIS (Patient-Reported Outcome Measurement Information System), PROMIS PF (PROMIS Physical Function v1.0), SCI (spinal cord injury), SCI-FI (Spinal Cord Injury–Functional Index), SCI-FI/C (Spinal Cord Injury–Functional Index/Capacity), TCC (test characteristic curve)
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Supported by the National Institutes of Health, an NIH Common Fund Initiative (grant no. U01AR057929); the National Institute of Disability, Independent Living, and Rehabilitation Research (grant nos. H133N060022, H133N060024, H133N060014, H133N060005, H133N060027, and H133N060032); and the Rick Hansen Institute (grant no. G2015-26). PROMIS was funded with cooperative agreements from the National Institutes of Health (NIH) Common Fund Initiative (Northwestern University, PI: David Cella, PhD, U54AR057951, U01AR052177; Northwestern University, PI: Richard C. Gershon, PhD, U54AR057943; American Institutes for Research, PI: Susan [San] D. Keller, PhD, U54AR057926; State University of New York, Stony Brook, PIs: Joan E. Broderick, PhD and Arthur A. Stone, PhD, U01AR057948, U01AR052170; University of Washington, Seattle, PIs: Heidi M. Crane, MD, MPH, Paul K. Crane, MD, MPH, and Donald L. Patrick, PhD, U01AR057954; University of Washington, Seattle, PI: Dagmar Amtmann, PhD, U01AR052171; University of North Carolina, Chapel Hill, PI: Harry A. Guess, MD, PhD [deceased], Darren A. DeWalt, MD, MPH, U01AR052181; Children's Hospital of Philadelphia, PI: Christopher B. Forrest, MD, PhD, U01AR057956; Stanford University, PI: James F. Fries, MD, U01AR052158; Boston University, PIs: Alan Jette, PT, PhD, Stephen M. Haley, PhD [deceased], and David Scott Tulsky, PhD [University of Michigan, Ann Arbor], U01AR057929; University of California, Los Angeles, PIs: Dinesh Khanna, MD [University of Michigan, Ann Arbor] and Brennan Spiegel, MD, MSHS, U01AR057936; University of Pittsburgh, PI: Paul A. Pilkonis, PhD, U01AR052155; Georgetown University, PIs: Carol. M. Moinpour, PhD [Fred Hutchinson Cancer Research Center, Seattle] and Arnold L. Potosky, PhD, U01AR057971; Children's Hospital Medical Center, Cincinnati, PI: Esi M. Morgan DeWitt, MD, MSCE, U01AR057940; University of Maryland, Baltimore, PI: Lisa M. Shulman, MD, U01AR057967; and Duke University, PI: Kevin P. Weinfurt, PhD, U01AR052186). NIH Science Officers on this project have included Deborah Ader, PhD, Vanessa Ameen, MD (deceased), Susan Czajkowski, PhD, Basil Eldadah, MD, PhD, Lawrence Fine, MD, DrPH, Lawrence Fox, MD, PhD, Lynne Haverkos, MD, MPH, Thomas Hilton, PhD, Laura Lee Johnson, PhD, Michael Kozak, PhD, Peter Lyster, PhD, Donald Mattison, MD, Claudia Moy, PhD, Louis Quatrano, PhD, Bryce Reeve, PhD, William Riley, PhD, Peter Scheidt, MD, Ashley Wilder Smith, PhD, MPH, Susana Serrate-Sztein, MD, William Phillip Tonkins, DrPH, Ellen Werner, PhD, Tisha Wiley, PhD, and James Witter, MD, PhD. The contents of this article use data developed under PROMIS. These contents do not necessarily represent an endorsement by the US Federal Government or PROMIS. See www.healthmeasures.net for additional information on the PROMIS initiative.
Disclosures: All authors have contributed significantly to the design, analysis, and writing of this manuscript. The contents represent original work and have not been published elsewhere. No commercial party having a direct financial interest in the results of the research supporting this article has or will confer a benefit upon the authors or upon any organization with which the authors are associated. SCI-FI Basic Mobility/Capacity (C), Fine Motor Function/C, and Self-Care/C item bank items, parameters, and data are copyright ©2013-2020 David Tulsky, Kessler Foundation, and Boston University. All rights reserved. All items are freely available to the public via [email protected], and there are currently no plans for Dr Tulsky, Kessler Foundation, or Boston University to profit from the SCI-FI instruments.