Highlights
- •Assessing outcomes using common metrics facilitates cumulative science.
- •The Spinal Cord Injury–Functional Index (SCI-FI) measures physical function after injury.
- •Linked SCI-FI Basic Mobility measure to PROMIS.
- •Researchers can now compare injury-specific mobility scores with PROMIS.
Abstract
Objective
Design
Setting
Participants
Interventions
Main Outcome Measures
Results
Conclusions
Keywords
List of abbreviations:
CAT (computerized adaptive test), DIF (differential item functioning), IRT (item response theory), NIH (National Institutes of Health), PROM (patient-reported outcome measure), PROMIS (Patient-Reported Outcome Measurement Information System), PROMIS PF (PROMIS Physical Function v1.0), SCI (spinal cord injury), SCI-FI (Spinal Cord Injury–Functional Index), SCI-FI/C (Spinal Cord Injury–Functional Index/Capacity), TCC (test characteristic curve)Purchase one-time access:
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Subscribe to Archives of Physical Medicine and RehabilitationReferences
- Patient-reported outcomes—harnessing patients’ voices to improve clinical care.N Engl J Med. 2017; 376: 105-108
- Spinal cord injury-functional index: item banks to measure physical functioning in individuals with spinal cord injury.Arch Phys Med Rehabil. 2012; 93: 1722-1732
- Development and initial evaluation of the spinal cord injury-functional index.Arch Phys Med Rehabil. 2012; 93: 1733-1750
- Development and initial evaluation of the SCI-FI/AT.J Spinal Cord Med. 2015; 38: 409-418
- The future of outcomes measurement: item banking, tailored short-forms, and computerized adaptive assessment.Qual Life Res. 2007; 16: 133-141
- The Patient-Reported Outcomes Measurement Information System (PROMIS): progress of an NIH Roadmap cooperative group during its first two years.Med Care. 2007; 45: S3-11
- The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005-2008.J Clin Epidemiol. 2010; 63: 1179-1194
- The PROMIS Physical Function item bank was calibrated to a standardized metric and shown to improve measurement efficiency.J Clin Epidemiol. 2014; 67: 516-526
- Physical function metric over measure: an illustration with the Patient-reported Outcomes Measurement Information System (PROMIS) and the Functional Assessment of Cancer Therapy (FACT).Cancer. 2018; 124: 153-160
- Establishing a common metric for self-reported anxiety: linking the MASQ, PANAS, and GAD-7 to PROMIS Anxiety.J Anxiety Disord. 2014; 28: 88-96
- Establishing a common metric for depressive symptoms: linking the BDI-II, CES-D, and PHQ-9 to PROMIS Depression.Psychol Assess. 2014; 26: 513
- Linking the activity measure for post acute care and the quality of life outcomes in neurological disorders.Arch Phys Med Rehabil. 2011; 92: S37-S43
- Measurement properties of the spinal cord injury-functional index (SCI-FI) short forms.Arch Phys Med Rehabil. 2014; 95 (.e5): 1289-1297
- The kernel method of test equating.Springer Verlag, New York2004
- Test equating, scaling, and linking: methods and practices.3rd ed. Springer, New York2014
Lee WC, Lee G. IRT linking and equating. In: Irwing P, Booth T, Hughes D, editors. The Wiley handbook of psychometric testing: a multidisciplinary reference on survey, scale and test development. Hoboken: John Wiley & Sons Ltd; 2018. p. 639–73
- Lordif: an R package for detecting differential item functioning using iterative hybrid ordinal logistic regression/item response theory and Monte Carlo simulations.J Stat Softw. 2011; 39: 1-30
- Calibration of an item pool for assessing the burden of headaches: an application of item response theory to the Headache Impact Test (HIT™).Qual Life Res. 2003; 12: 913-933
- The EUROHIS-QOL 8-item index: psychometric results of a cross-cultural field study.Eur J Public Health. 2005; 16: 420-428
- A note on the choice of an anchor test in equating.ETS Res Report Ser. 2012; 2012 (i-9)
- Vertical equating using the Rasch model.J Educ Meas. 1980; 17: 179-193
- Item characteristic curve solutions to three intractable testing problems 1.ETS Res Bull Ser. 1977; 1977 (i-41)
- Equating logistic ability scales by a weighted least squares method.Jpn Psychol Res. 1980; 22: 144-149
- Developing a common metric in item response theory.Appl Psychol Meas. 1983; 7: 201-210
- Characterizing sources of uncertainty in item response theory scale scores.Educ Psychol Meas. 2012; 72: 264-290
- Applications of the analytically derived asymptotic standard errors of item response theory item parameter estimates.J Educ Meas. 2004; 41: 85-117
- mirt: A multidimensional item response theory package for the R environment.J Stat Softw. 2012; 48: 1-29
- psych: Procedures for Personality and Psychological Research. Version 1.6.9.Northwestern University, Evanston, IL2017
- plink: An R package for linking mixed-format tests using IRT-based methods.J Stat Softw. 2010; 35: 1-33
Article Info
Publication History
Footnotes
Supported by the National Institutes of Health, an NIH Common Fund Initiative (grant no. U01AR057929); the National Institute of Disability, Independent Living, and Rehabilitation Research (grant nos. H133N060022, H133N060024, H133N060014, H133N060005, H133N060027, and H133N060032); and the Rick Hansen Institute (grant no. G2015-26). PROMIS was funded with cooperative agreements from the National Institutes of Health (NIH) Common Fund Initiative (Northwestern University, PI: David Cella, PhD, U54AR057951, U01AR052177; Northwestern University, PI: Richard C. Gershon, PhD, U54AR057943; American Institutes for Research, PI: Susan [San] D. Keller, PhD, U54AR057926; State University of New York, Stony Brook, PIs: Joan E. Broderick, PhD and Arthur A. Stone, PhD, U01AR057948, U01AR052170; University of Washington, Seattle, PIs: Heidi M. Crane, MD, MPH, Paul K. Crane, MD, MPH, and Donald L. Patrick, PhD, U01AR057954; University of Washington, Seattle, PI: Dagmar Amtmann, PhD, U01AR052171; University of North Carolina, Chapel Hill, PI: Harry A. Guess, MD, PhD [deceased], Darren A. DeWalt, MD, MPH, U01AR052181; Children's Hospital of Philadelphia, PI: Christopher B. Forrest, MD, PhD, U01AR057956; Stanford University, PI: James F. Fries, MD, U01AR052158; Boston University, PIs: Alan Jette, PT, PhD, Stephen M. Haley, PhD [deceased], and David Scott Tulsky, PhD [University of Michigan, Ann Arbor], U01AR057929; University of California, Los Angeles, PIs: Dinesh Khanna, MD [University of Michigan, Ann Arbor] and Brennan Spiegel, MD, MSHS, U01AR057936; University of Pittsburgh, PI: Paul A. Pilkonis, PhD, U01AR052155; Georgetown University, PIs: Carol. M. Moinpour, PhD [Fred Hutchinson Cancer Research Center, Seattle] and Arnold L. Potosky, PhD, U01AR057971; Children's Hospital Medical Center, Cincinnati, PI: Esi M. Morgan DeWitt, MD, MSCE, U01AR057940; University of Maryland, Baltimore, PI: Lisa M. Shulman, MD, U01AR057967; and Duke University, PI: Kevin P. Weinfurt, PhD, U01AR052186). NIH Science Officers on this project have included Deborah Ader, PhD, Vanessa Ameen, MD (deceased), Susan Czajkowski, PhD, Basil Eldadah, MD, PhD, Lawrence Fine, MD, DrPH, Lawrence Fox, MD, PhD, Lynne Haverkos, MD, MPH, Thomas Hilton, PhD, Laura Lee Johnson, PhD, Michael Kozak, PhD, Peter Lyster, PhD, Donald Mattison, MD, Claudia Moy, PhD, Louis Quatrano, PhD, Bryce Reeve, PhD, William Riley, PhD, Peter Scheidt, MD, Ashley Wilder Smith, PhD, MPH, Susana Serrate-Sztein, MD, William Phillip Tonkins, DrPH, Ellen Werner, PhD, Tisha Wiley, PhD, and James Witter, MD, PhD. The contents of this article use data developed under PROMIS. These contents do not necessarily represent an endorsement by the US Federal Government or PROMIS. See www.healthmeasures.net for additional information on the PROMIS initiative.
Disclosures: All authors have contributed significantly to the design, analysis, and writing of this manuscript. The contents represent original work and have not been published elsewhere. No commercial party having a direct financial interest in the results of the research supporting this article has or will confer a benefit upon the authors or upon any organization with which the authors are associated. SCI-FI Basic Mobility/Capacity (C), Fine Motor Function/C, and Self-Care/C item bank items, parameters, and data are copyright ©2013-2020 David Tulsky, Kessler Foundation, and Boston University. All rights reserved. All items are freely available to the public via [email protected], and there are currently no plans for Dr Tulsky, Kessler Foundation, or Boston University to profit from the SCI-FI instruments.
