Abstract
Systems for stroke rehabilitation and recovery are variable and fragmented; stroke
survivors often experience gaps in care with detrimental effects on their recovery.
We designed and hosted a multidisciplinary and interactive workshop to discuss challenges
facing patients recovering from stroke and to brainstorm solutions.
Forty-one participants including clinicians, researchers, and stroke survivors attended
the workshop. Participants were surveyed beforehand about challenges facing stroke
recovery and results were tabulated as a word cloud. An interactive, design-thinking
exercise was conducted that involved completing workbooks, hands-on prototype designing,
and presentations, which were then analyzed through qualitative content analysis using
an inductive approach.
High frequency words in the word cloud of survey responses included access, fragmented,
and uncertainty. Qualitative analysis revealed 6 major challenge themes including
poor (1) transitions in and (2) access to care; (3) barriers to health insurance;
(4) lack of patient support; (5) knowledge gaps; and (6) lack of standardized outcomes.
Eleven unique solutions were proposed that centered around new technologies, health
care system changes, and the creation of new support roles. Analysis of the alignment
between the challenges and solutions revealed that the single proposed solution that
solved the most identified challenges was a “comprehensive stroke clinic with follow-up
programs, cutting edge treatments, patient advocation and research.”
Through our interactive design-thinking workshop process and inductive thematic analysis,
we identified major challenges facing patients recovering from stroke, collaboratively
proposed solutions, and analyzed their alignment. This process offers an innovative
approach to reaching consensus among interdisciplinary stakeholders.
Keywords
List of abbreviations:
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Article info
Publication history
Published online: February 05, 2021
Footnotes
Supported by the American Heart Association/American Stroke Association Northeast Cerebrovascular Consortium pilot grant and the Massachusetts General Hospital Center for Neurotechnology and Neurorecovery. This report does not reflect the view or position of the American Heart Association/American Stroke Association or the Northeast Cerebrovascular Consortium but is a product of the authors and contributed to by workshop attendees.
Disclosures: None.
Identification
Copyright
Published by Elsevier Inc. on behalf of the American Congress of Rehabilitation Medicine
