Abstract
Objective
To develop traumatic brain injury (TBI)-optimized versions of the Quality of Life
in Neurological Disorders (Neuro-QoL) Ability to Participate in Social Roles and Activities
and Satisfaction with Social Roles and Activities item banks, evaluate the psychometric
properties of the item banks developed for adults with TBI, develop short form and
computer adaptive test (CAT) versions, and report information to facilitate research
and clinical applications.
Design
We used a mixed methods design to develop and evaluate Ability to Participate in Social
Roles and Activities and Satisfaction with Social Roles and Activities items. Focus
groups defined the constructs, cognitive interviews guided item revisions, and confirmatory
factor analysis and item response theory methods helped calibrate item banks and evaluate
differential item functioning related to demographic and injury characteristics.
Setting
Five TBI Model Systems centers in the United States.
Participants
Community-dwelling adults with TBI (N=556).
Interventions
None.
Outcome Measures
Traumatic Brain Injury–Quality of Life (TBI-QOL) Ability to Participate in Social
Roles and Activities and TBI-QOL Satisfaction with Social Roles and Activities item
banks.
Results
Forty-five Ability to Participate in Social Roles and Activities and 41 Satisfaction
with Social Roles and Activities items demonstrated good psychometric properties.
Although some of the items are new, most were drawn from analogous banks in the Neuro-QoL
measurement system. Consequently, the 2 TBI-QOL item banks were linked to the Neuro-QoL
metric, and scores are comparable with the general population. All CAT and short forms
correlated highly (>0.90) with the full item banks and demonstrate comparable construct
coverage and measurement error.
Conclusion
The TBI-QOL Ability to Participate in Social Roles and Activities and TBI-QOL Satisfaction
with Social Roles and Activities item banks are TBI-optimized versions of the Neuro-QoL
Ability to Participate in Social Roles and Activities and Satisfaction with Social
Roles and Activities item banks and demonstrate excellent measurement properties in
individuals with TBI. These measures, particularly in CAT or short form format, are
suitable for efficient and precise measurement of social outcomes in clinical and
research applications.
Keywords
List of abbreviations:
CAT (computer adaptive test), CFA (confirmatory factor analysis), CFI (comparative fit index), DIF (differential item functioning), GRM (graded response model), IRT (item response theory), Neuro-QoL (Quality of Life in Neurological Disorders), PROMIS (Patient Reported Outcome Measurement Information System), RMSEA (root mean square error of approximation), TBI (traumatic brain injury), TBI-QOL (Traumatic Brain Injury–Quality of Life measurement system), TLI (Tucker-Lewis index)To read this article in full you will need to make a payment
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Article info
Publication history
Published online: August 29, 2019
Footnotes
All TBI-QOL items, parameters, and data are ©2015 David Tulsky and Kessler Foundation. All rights reserved. The items are freely available to the public via [email protected], and there are currently no plans for Dr Tulsky or Kessler Foundation to profit from the use of the TBI-QOL instruments.
Supported by grant numbers H133G070138, H133A070037, H133A070043, H133A080045, H133A080044, and H133A70038 from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). Additional support for the preparation of this manuscript was provided by NIDILRR (grant no. H133A120100).
Identification
Copyright
© 2019 by the American Congress of Rehabilitation Medicine
