Main Outcome Measures
List of abbreviations:CAT (computerized adaptive test), est-SCI-FI (estimated Spinal Cord Injury-Functional Index), ICC (intraclass correlation coefficient), MWC (manual wheelchair), PEDI-SCI/AM (Pediatric Spinal Cord Injury Activity Measure), PROM (patient-reported outcome measure), PWC (power wheelchair), SCI (spinal cord injury), SCI-FI (Spinal Cord Injury-Functional Index), SF (short form)
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- Determining a transitional scoring link between PROMIS® pediatric and adult physical health measures.Qual Life Res. 2019; 28: 1217-1229
- Linkage between the PROMIS® pediatric and adult emotional distress measures.Qual Life Res. 2016; 25: 823-833
- Test equating, scaling, and linking: methods and practices.2nd ed. Springer-Verlag, New York2004: 372
- Development and validation of short forms of activity for youth with.SCI. Spinal Cord. 2016; 54: 546-552
- Developing a contemporary functional outcome measure for spinal cord injury research.Spinal Cord. 2010; 48: 262-267
- Tracking functional status across the spinal cord injury lifespan: linking pediatric and adult patient-reported outcome scores.Arch Phys Med Rehabil. 2014; 95: 2078-2085
- Development and initial evaluation of the spinal cord injury-functional index.Arch Phys Med Rehabil. 2012; 93: 1733-1750
- IRTEQ: Windows application that implements item response theory scaling and equating.Appl Psychol Meas. 2010; 33: 491-493
- Equating, concordance, and expectation.App Psychol Meas. 2004; 28: 227-246
- Sizing up linkages.in: Dorans N.J. Pommerich M. Hollands P.W. Linking and aligning scores and scales. Springer, New York2007: 179-198
- Statistics corner: a guide to appropriate use of correlation coefficient in medical research.Malar Med J. 2012; 24: 69-71
- Validation of FIM™-MDS crosswalk conversion algorithm.J Rehabil Res Dev. 2008; 45: 1065-1076
- Development and PROM evaluation of a crosswalk between the SF-36 physical functioning scale and Health Assessment Questionnaire disability index in rheumatoid arthritis.Health Qual Life Outcomes. 2013; 11: 199
- Concordance of child and parent reports of health-related quality of life in children with mild traumatic brain or non-brain injuries and in uninjured children: longitudinal evaluation.J Pediatr Health Care. 2015; 29: 343-351
- Factors influencing agreement between child self-report and parent proxy-reports on the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™) generic core scales.Health Qual Life Outcomes. 2006; 4: 58
- Rehabilitation and future participation of youth following spinal cord injury: caregiver perspectives.Spinal Cord. 2009; 47: 882-886
- Obstacles to community participation among youth with spinal cord injury.J Spinal Cord Med. 2011; 34: 576-585
- Relationships between caregiver characteristics and health-related quality of life among youth with spinal cord injury.Top Spinal Cord Inj Rehabil. 2016; 22: 149-157
- Psychosocial outcomes among youth with spinal cord injury and their primary caregivers.Top Spinal Cord Inj Rehabil. 2012; 18: 67-72
Supported by Shriners Hospitals for Children Project #79142, Medical Rehabilitation Infrastructure Network (grant no. #5R24HD065688-05).
Disclosures: M.J.Mulcahey received compensation for her role as associate editor of Topics in Spinal Cord Injury Rehabilitation and royalties for the textbook Spinal Cord Injury in Children and Young Adults. She received grant funding from Shriners Hospitals for Children, Craig H. Neilsen Foundation, Rick Hansen Institute, and National Institute of Neurologic Disorders and Stroke. Lawrence C.Vogel received compensation for his role as editor of Topics in Spinal Cord Injury Rehabilitation and royalties for the textbook Spinal Cord Injury in Children and Young Adults. He received grant funding from Shriners Hospitals for Children and Craig H. Neilsen Foundation. The other authors have nothing to disclose.