Abstract
Objective
To describe different domains of participation such as productive, leisure and social
activities and describe sociodemographic and spinal cord injury (SCI)-related characteristics
that are associated with participation in these domains in a large sample of community-dwelling
individuals with SCI in Switzerland.
Design
Cross-sectional population-based survey within the Swiss Spinal Cord Injury Cohort
Study. Participation in major life domains was measured by the Utrecht Scale for Evaluation
of Rehabilitation-Participation (USER-Participation). Univariable unconditional analysis
and unbiased recursive partitioning were used to identify the predominant associations
of sociodemographic and SCI-related characteristics with multiple dimensions of participation.
Setting
Community.
Participants
Swiss residents aged 16 years or older and living with traumatic or nontraumatic SCI
(N=1549).
Interventions
Not applicable.
Main Outcome Measure
The USER-Participation, a 32-item self-report questionnaire with 3 scales (Frequency,
Restrictions, and Satisfaction) to assess key domains of participation (productive,
leisure, social).
Results
Frequency (median 34.5 out of 100) in productive, outdoor leisure, and social activities
was reduced with distinctive perceived restrictions in work and education, sports,
and partner relationships. Domestic leisure activities (65.4%) and maintaining social
relationships (76.1%) were those activities most often performed and with least perceived
restrictions. Participants were generally satisfied with their current daily life
activities. Lower scores across all participation scales were associated with more
severe SCI, higher age, being female, not having a partner, and lower level of education.
Conclusions
This study provides a thorough analysis of participation in major life domains of
individuals with SCI in Switzerland. Different risk groups for reduced levels in participation
in productive, leisure, and social activities were identified. This population-based
evidence is instrumental to the better targeting of rehabilitation and policy interventions
that aim to improve community participation.
Keywords
List of abbreviations:
ANOVA (analysis of variance), CTREE (conditional inference trees), ICF (International Classification of Functioning, Disability and Health), SCI (spinal cord injury), SwiSCI (Swiss Spinal Cord Injury Community Survey), USER-Participation (Utrecht Scale for Evaluation of Rehabilitation-Participation)To read this article in full you will need to make a payment
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Article info
Publication history
Published online: April 23, 2019
Footnotes
Current affiliation for Bienert, Roche Diagnostics, Diagnostics Information Solutions, Basel, Switzerland.
Current affiliation for Scheel-Sailer and Weiss, Department for Epidemiology and Preventive Medicine, University of Regensburg, Regensburg, Germany.
Supported by the Swiss Paraplegic Foundation.
Disclosures: none.
Identification
Copyright
© 2019 Elsevier Ltd. All rights reserved.
