Abstract
Objective
To develop a set of composite scores that can be used for interpreting quality of
life (QOL) after traumatic brain injury (TBI) using 9 of the patient-reported outcomes
measures from the Traumatic Brain Injury Quality of Life (TBI-QOL) measurement system.
Design
Participants completed 20 item banks from the TBI-QOL as part of a larger assessment.
Composite index scores were created with normalized transformation with nonlinear
area conversion using scores from 9 of the banks, and are expressed in index score
units, with higher composite scores indicating better functioning. For descriptive
purposes, associations among composites and individual banks were evaluated using
regression, along with patterns of composite scores by injury severity groups using
analysis of variance.
Setting
Three medical centers in the United States.
Participants
Community-dwelling adults (n=504) with a history of TBI.
Interventions
Not applicable.
Main Outcomes Measure
TBI-QOL.
Results
Five composite indices were generated: global QOL, physical health, emotional health,
cognitive health, and social health. Lookup tables are provided herein. Composite
scores were highly intercorrelated (all r>.60, P<.0001), and individual TBI-QOL banks all correlate strongly with the global QOL composite
in the expected direction (all r>.50, P<.0001).
Conclusion
Researchers and clinicians can use the TBI-QOL global QOL, physical health, emotional
health, cognitive health, and social health composite scores to aggregate results
from multiple TBI-QOL banks, which is anticipated to ease interpretation and reliability.
This work additionally highlights the importance of considering nonphysical symptoms
as outcomes variables for TBI research, as cognitive, social, and emotional domains
were some of the most strongly correlated banks with the global QOL composite.
Keywords
List of abbreviations:
CAT (computer adaptive test), GCS (Glasgow Coma Scale), HRQOL (health-related quality of life), Neuro-QoL (Quality of Life in Neurological Disorders), PROMIS (Patient-Reported Outcomes Measurement Information System), QOL (quality of life), SCI-QOL (Spinal Cord Injury Quality of Life Measurement System), TBI (traumatic brain injury), TBI-QOL (Traumatic Brain Injury Quality of Life Measurement System)To read this article in full you will need to make a payment
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Article info
Publication history
Published online: July 03, 2018
Footnotes
Supported by grant numbers H133G070138, H133A070037, H133A070043, H133A080045, H133A080044, and H133A70038 from the National Institute on Disability, Independent Living, and Rehabilitation Research.
Disclosures: none.
Identification
Copyright
© 2018 by the American Congress of Rehabilitation Medicine
