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Building a Rehabilitative Care Measurement Instrument to Improve the Patient Experience

      Highlights

      • We developed the WatLX patient experience measure for the rehabilitative care sector.
      • The measurement tool includes a parsimonious set of 10 patient experience questions that underwent face and content validation through expert consultations and a card sort activity, and usability testing through cognitive interviews.
      • The WatLX takes patients approximately 10 minutes to complete, which may contribute to higher completion rates.
      • Psychometric and feasibility testing is reported elsewhere. Future development includes releasing multi-lingual formats, developing a version for clients with cognitive deficits, and exploring administration via web-based and smartphone applications.

      Abstract

      Objective

      To develop and test face and content validity, and user interface design of a rehabilitative care patient experience measure.

      Design

      Mixed methods, cross-sectional validation study that included subject matter expert input. Cognitive interviewing tested user interface and design.

      Setting

      Outpatient rehabilitative care settings.

      Participants

      Subject matter experts (n=3), health care providers (n=137), and patients and caregivers (n=5) contributed to the question development. Convenience and snowball sampling were used to recruit rehabilitative care patients postdischarge (n=9) for cognitive interviews to optimize survey design and user interface (N=154).

      Interventions

      Not applicable.

      Main Outcome Measure

      This novel survey instrument measures 6 concepts previously identified as key to outpatient rehabilitative care patients’ experience: ecosystem issues, client and informal caregiver engagement, patient and health care provider relations, pain and functional status, group and individual identity, and open-ended feedback.

      Results

      502 survey questions from psychometrically tested instruments, secondary data from a related ethnographic study, and consultations with health care providers, patients, caregivers, and subject matter experts, were analyzed to create a 10-item questionnaire representing 6 key constructs that influence patient experience quality. Cognitive interviewing with 9 patients (3 rounds of 3 participants each), produced 3 progressively edited versions of the survey instrument. A final version required no further modifications.

      Discussion

      Rehabilitative care clients have characteristics that differentiate their experience from that of other sectors and patient groups, warranting a distinct experience measure. The survey instrument includes a parsimonious set of questions that address strategic issues in the ongoing improvement of care delivery and the patient experience in the rehabilitative care sector.

      Conclusion

      The rehabilitative care patient experience survey instrument developed has an acceptable user interface, and content and face validity. Psychometric testing of the survey instrument is reported elsewhere.

      Keywords

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