Highlights
- •Perceived participation was evaluated in 236 stroke survivors 6 months poststroke.
- •Physical function was the strongest predictor of participation.
- •Social participation was significantly influenced by depression status.
- •Participation factors should be individually assessed for tailored early intervention.
- •Physical function should be emphasized early poststroke.
Abstract
Objectives
To describe perceived participation of first-stroke survivors in mainland China, and
to determine variables that may correlate with perceived participation 6 months after
discharge.
Design
Cross-sectional survey.
Setting
Neurology department of a tertiary hospital, with subsequent follow-up of patients
in their homes.
Participants
First-stroke survivors (N=236) who had been treated in the neurology department and
discharged 6 months before their participation in our study.
Interventions
Not applicable.
Main Outcome Measures
Participation was assessed using the Chinese version of the self-report Impact on
Participation and Autonomy Questionnaire. Performance on activities of daily living
was measured using the Barthel Index, and physical function was measured with the
Chinese Stroke Scale. The Hospital Anxiety and Depression Scale and the Social Support
Rating Scale were also used.
Results
The mean score of perceived participation was 40.39±15.29, and 52.1%, 38.1%, 33.1%,
and 5.5% of the participants reported insufficient participation in the domains of
autonomy outdoors, family role, social relations, and autonomy indoors, respectively.
Physical function served as the strongest correlate for the domains of family role
and autonomy outdoors (standardized coefficients =.426 and .336, respectively), while
depression was the strongest correlate for the domain of social relations (standardized
coefficient =.315).
Conclusions
Physical function and activities of daily living were significantly associated with
perceived participation in almost all domains. Depression was an important correlater
of participation in the social relations domain. Perceived participation may be influenced
by multiple factors, and tailored strategies should be implemented early in the rehabilitation
phase poststroke to promote participation in all domains of daily living.
Keywords
List of abbreviations:
IPA (Impact on Participation and Autonomy Questionnaire), IPA-C (Chinese version of the Impact on Participation and Autonomy Questionnaire)To read this article in full you will need to make a payment
Purchase one-time access:
Academic & Personal: 24 hour online accessCorporate R&D Professionals: 24 hour online accessOne-time access price info
- For academic or personal research use, select 'Academic and Personal'
- For corporate R&D use, select 'Corporate R&D Professionals'
Subscribe:
Subscribe to Archives of Physical Medicine and RehabilitationAlready a print subscriber? Claim online access
Already an online subscriber? Sign in
Register: Create an account
Institutional Access: Sign in to ScienceDirect
References
- Global and regional burden of stroke during 1990-2010: findings from the Global Burden of Disease Study 2010.Lancet. 2014; 383: 245-254
- Chinese stroke prevention and control report 2015 publishes that stroke is the first cause of death in China.(Available at:) (Accessed May 10, 2015)
- Chinese stroke association. Establishment of Chinese Stroke Society.(Available at:) (Accessed January 13, 2015)
- Time to rethink long-term rehabilitation management of stroke patients.Top Stroke Rehabil. 2012; 19: 457-462
- Rasch analysis of a new stroke-specific outcome scale: the Stroke Impact Scale.Arch Phys Med Rehabil. 2003; 84: 950-963
- Understanding the pattern of functional recovery after stroke: facts and theories.Restor Neurol Neurosci. 2004; 22: 281-299
- Global variation in stroke burden and mortality: estimates from monitoring, surveillance, and modelling.Lancet Neurol. 2009; 8: 345-354
- Activities, participation and satisfaction one-year post stroke.Disabil Rehabil. 2007; 29: 559-566
- Associations between social participation and subjective quality of life for adults with moderate to severe traumatic brain injury.Disabil Rehabil. 2014; 36: 1409-1418
- Predictors of handicap situations following post-stroke rehabilitation.Disabil Rehabil. 2002; 24: 774-785
- Predictors of long-term participation after stroke.Disabil Rehabil. 2006; 28: 221-230
- Community participation following cerebrovascular accident: impact of the buffering model of social support.Am J Occup Ther. 2006; 60: 129-135
- Determinants of handicap after stroke: the North East Melbourne Stroke Incidence Study (NEMESIS).Stroke. 2004; 35: 715-720
- Impact on Participation and Autonomy (IPA): PSYChometric evaluation of the Persian version to use for persons with stroke.Scand J Occup Ther. 2011; 18: 59-71
- Association between daily activities following stroke rehabilitation and social role functioning upon return to the community.Top Stroke Rehabil. 2010; 17: 47-57
- Association between impairments, self-care ability and social activities 1 year after stroke.Disabil Rehabil. 1999; 21: 372-377
- How does stroke restrict participation in long-term post-stroke survivors?.Acta Neurol Scand. 2005; 112: 157-162
- Determinants of participation restriction among community dwelling stroke survivors: a path analysis.BMC Neurol. 2009; 9: 49
- Factors associated with perceived participation three months after being discharged from a tertiary hospital.Clin Rehabil. 2017; 31: 1257-1266
- Long-term changes in participation after stroke.Top Stroke Rehabil. 2006; 13: 86-96
- Handicap and its determinants of change in stroke survivors: one-year follow-up study.Stroke. 2008; 39: 148-153
- Short-term changes in and predictors of participation of older adults after stroke following acute care or rehabilitation.Neurorehabil Neural Repair. 2008; 22: 288-297
- Clinical guide for diagnosis and treatment: the branch of Neurology.People's Medical Publishing House, Beijing2006
- Participation objective, participation subjective: a measure of participation combining outsider and insider perspectives.J Head Trauma Rehabil. 2004; 19: 459-481
- Development and initial psychometric evaluation of the Participation Measure for Post-Acute Care (PM-PAC).Am J Phys Med Rehabil. 2007; 86: 57-71
- The development of a handicap assessment questionnaire: the Impact on Participation and Autonomy (IPA).Clin Rehabil. 1999; 13: 411-419
- Measuring participation as defined by the World Health Organization in the International Classification of Functioning, Disability and Health. Psychometric properties of the Ghent Participation Scale.Clin Rehabil. 2017; 31: 379-393
- Development of the Participation Measure–3 Domains, 4 Dimensions (PM-3D4D): a new outcome measure for rehabilitation.Arch Phys Med Rehabil. 2017; 98: 286-294
- Perceptions of participation and predictors of perceived problems with participation in persons with spinal cord injury.J Rehabil Med. 2005; 37: 3-8
- Perceived participation and autonomy: aspects of functioning and contextual factors predicting participation after stroke.J Rehabil Med. 2011; 43: 388-397
- The ‘Impact on Participation and Autonomy’: acceptability of the English version in a multiple sclerosis outpatient setting.Mult Scler. 2003; 9: 612-615
- Impact on Participation and Autonomy Questionnaire: internal scale validity of the Swedish version for use in people with spinal cord injury.J Rehabil Med. 2007; 39: 156-162
- [Revising and analysing the reliability and validity of Chinese version of Impact on Participation and Autonomy Questionnaire].Chin J Rehabil Med. 2012; 27 ([Chinese]): 923-927
- The validity and reliability of the Chinese version of the Impact on Participation and Autonomy Questionnaire among stroke patients.Chin Nurs Manage. 2013; 13: 22-24
- Functional evaluation: the Barthel Index.Md State Med J. 1965; 14: 61-65
- The Hospital Anxiety and Depression Scale.Acta Psychiatr Scand. 1983; 67: 361-370
- Social Support Rating Scale: theoretical basis and research applications.J Clin Psychiatry. 1994; 4: 98-100
- Chinese Medical Association. The clinical guidelines for diagnosis and treatment: the Archives of Neurology. Beijing: People's Medical Publishing House; 2017.(Available at:) (Accessed January 4, 2018)
- Chinese stroke epidemiology and community groups to intervene.Chin J Front Med Sci. 2009; 2 (electronic version): 49-53
- Social isolation and physical barriers in the houses of stroke survivors in rural China.Arch Phys Med Rehabil. 2016; 97: 2054-2060
- Measuring autonomy in disabled people: validation of a new scale in a UK population.Clin Rehabil. 2006; 20: 793-803
- Beyond disability: perceived participation in people with a chronic disabling condition.Clin Rehabil. 2002; 16: 27-35
- Poststroke depression: an 18-month follow-up.Stroke. 2003; 34: 138-143
- Changes in autonomy and participation in seniors after stroke: a pilot study.Act Adapt Aging. 2004; 28: 49-70
- Zengzi. Encyclopaedia Britannica. Britannica Academic. Encyclopaedia Britannica Inc.(Available at:) (Accessed March 21, 2016)
Article info
Publication history
Published online: October 26, 2017
Footnotes
Supported by the Shanghai Municipal Commission of Health and Family Planning (grant no. XBR2013108) and the Shanghai Science and Technology Committee (grant no. 16XD1403200).
Disclosures: none.
Identification
Copyright
© 2017 by the American Congress of Rehabilitation Medicine