Abstract
Objective
To report and synthesize the experiences, needs, and preferences of carers of stroke
survivors undergoing inpatient rehabilitation.
Data Sources
MEDLINE, CINAHL, Embase, PsycINFO, and Web of Science were searched to March 2016.
Reference lists of relevant publications were searched. No language restrictions were
applied.
Study Selection
Eligible qualitative studies reported the experiences of carers of stroke survivors
who underwent inpatient rehabilitation. The search yielded 3532 records; 93 full-text
publications were assessed for eligibility, and 34 documents (33 studies) were included.
Comprehensiveness of reporting was assessed using the Consolidated Criteria for Reporting
Qualitative Health Research framework.
Data Extraction
Data on the characteristics of included studies were independently extracted by 2
authors. Differences in data extraction between authors were resolved through discussion
or by a third author. All text in studies' results and discussion sections were extracted
for analysis.
Data Synthesis
Extracted texts were analyzed inductively using thematic synthesis. Seven analytical
themes were developed that related to the carers' experiences, needs, and preferences:
(1) overwhelmed with emotions; (2) recognition as a stakeholder in recovery; (3) desire
to be heard and informed; (4) persisting for action and outcomes; (5) being legitimate
clients; (6) navigating an alien culture and environment; and (7) managing the transition
home.
Conclusions
This systematic review provides new insights into the experiences, needs, and preferences
of carers of stroke survivors undergoing inpatient rehabilitation. Carers experienced
distress as they navigated a foreign culture and environment without adequate communication
and processes in place for their inclusion. We recommend deliberate efforts to provide
a more inclusive environment that better supports and prepares carers for their new
role.
Keywords
List of abbreviations:
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Article info
Publication history
Published online: March 28, 2017
Footnotes
Supported by a National Health and Medical Research Council (NHMRC) Early Career Fellowship (no. 1052524); an NHMRC Senior Research Fellowship (no. 1058635); and Australian Postgraduates Awards.
PROSPERO Systematic Review Registration No.: CRD42015017315.
Disclosures: none.
Identification
Copyright
© 2017 by the American Congress of Rehabilitation Medicine
