Coping With Caregiver Burnout When Caring for a Person With Neurodegenerative Disease: A Guide for Caregivers

Published:February 07, 2017DOI:https://doi.org/10.1016/j.apmr.2016.11.002
      Caring for a person with a neurodegenerative disease (eg, Alzheimer disease, Parkinson disease, multiple sclerosis, amyotrophic lateral sclerosis, Huntington disease) can be extremely challenging.
      • Bertram L.
      • Tanzi R.E.
      The genetic epidemiology of neurodegenerative disease.
      The challenges grow as the disease gets worse. If you are a caregiver of a person with a neurodegenerative disease, there are steps you may need to consider to decrease the risk or amount of caregiver burnout. This may help maintain or improve your health and wellness. It is important for you to know if you have caregiver burnout, or the common triggers that may cause your burnout. By recognizing and addressing these factors, you will be able to take healthy and manageable control over your caregiver duties.
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      References

        • Bertram L.
        • Tanzi R.E.
        The genetic epidemiology of neurodegenerative disease.
        J Clin Invest. 2005; 115: 1449-1457
        • Yu H.
        • Wang X.
        • He R.
        • Liang R.
        • Zhou L.
        Measuring the caregiver burden of caring for community-residing people with Alzheimer's disease.
        PLoS One. 2015; 10: e0132168
        • Habermann B.
        • Hines D.
        • Davis L.L.
        Caring for parents with neurodegenerative disease: a qualitative description.
        Clin Nurse Spec. 2013; 27: 182-187
        • Ekwall A.K.
        • Sivberg B.
        • Hallberg I.R.
        Older caregivers' coping strategies and sense of coherence in relation to quality of life.
        J Adv Nurs. 2007; 57: 584-596
        • Daviglus M.L.
        • Bell C.C.
        • Berrettini W.
        • et al.
        NIH state-of-the-science conference statement: preventing Alzheimer's disease and cognitive decline.
        NIH Consens State Sci Statements. 2010; 27: 1-30
        • Farran C.J.
        • Staffileno B.A.
        • Gilley D.W.
        • et al.
        A lifestyle physical activity intervention for caregivers of persons with Alzheimer's disease.
        Am J Alzheimers Dis Other Demen. 2008; 23: 132-142
        • Geiger J.R.
        • Wilks S.E.
        • Lovelace L.L.
        • Chen Z.
        • Spivey C.A.
        Burden among male Alzheimer's caregivers: effects of distinct coping strategies.
        Am J Alzheimers Dis Other Demen. 2015; 30: 238-246
        • Lilly M.B.
        • Robinson C.A.
        • Holtzman S.
        • Bottorff J.L.
        Can we move beyond burden and burnout to support the health and wellness of family caregivers to persons with dementia? Evidence from British Columbia, Canada.
        Health Soc Care Community. 2012; 20: 103-112
        • Liptak A.
        • Tate J.
        • Flatt J.
        • Oakley M.A.
        • Lingler J.
        Humor and laughter in persons with cognitive impairment and their caregivers.
        J Holist Nurs. 2014; 32: 25-34