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Measurement Characteristics and Clinical Utility of the Urinary Incontinence Quality of Life Scale in People With Incontinence and Multiple Sclerosis

      Urinary incontinence (UI), which can occur at any age, involves an unintentional loss of bladder control. UI can occur in individuals across a broad range of diagnoses and medical conditions1. 2. 3. 4. and is a frequently encountered problem in people with multiple sclerosis (MS). UI ranges in severity, but even comparatively minor cases can have a significant effect on people's quality of life and well-being.1 Thus, it is important to assess for, diagnose, and treat UI in people who have MS as soon as possible.1 The Urinary Incontinence Quality of Life Scale (I-QOL) is a self-report measure designed to assess the effect of UI on patients' health-related quality of life and has been validated in patients with MS.1. 2. 3. The I-QOL, which can be administered in <5 minutes, consists of 22 items and is composed of 3 subdomains: (1) Avoidance and Limiting Behaviors, (2) Psychosocial Impact, and (3) Social Embarrassment.3 Both a total score and individual subdomain scores can be calculated to help inform clinician decision making and treatment planning.
      This abbreviated summary provides a review of the psychometric properties of the I-QOL in people with MS.
      A full review of the I-QOL and reviews of ∼350 other instruments for patients with various health conditions can be found at www.rehabilitationmeasures.org. Please address correspondence to [email protected] .
      • 1.
        Eyigor S, Karapolat H, Akkoc Y, Yesil H, Ekmekci O. Quality of life in patients with multiple sclerosis and urinary disorders: reliability and validity of Turkish-language version of Incontinence Quality of Life Scale. J Rehabil Res Dev 2010;47:67-72.
      • 2.
        Schurch B, Denys P, Kozma C, Reese P, Slaton T, Barron R. Reliability and validity of the Incontinence Quality of Life Questionnaire in patients with neurogenic urinary incontinence. Arch Phys Med Rehabil 2007;88:646-52.
      • 3.
        Wagner T, Patrick D, Bavendam T, Martin M, Buesching D. Quality of life of persons with urinary incontinence: development of a new measure. Urology 1996;47:67-71.
      • 4.
        Patrick D, Khalaf K, Dmochowski R, Kowalski J, Globe D. Psychometric performance of the Incontinence Quality of Life Questionnaire among patients with overactive bladder and urinary incontinence. Clin Ther 2013;35:836-45.
      This instrument summary is designed to facilitate the selection of outcome measures by trained clinicians. The information contained in this summary represents a sample of the peer-reviewed research available at the time of this summary's publication. The information contained in this summary does not constitute an endorsement of this instrument for clinical practice. The views expressed are those of the summary authors and do not represent those of authors' employers, instrument owner(s), the Archives of Physical Medicine and Rehabilitation, the Rehabilitation Measures Database, or the United States Department of Education. The information contained in this summary has not been reviewed externally.
      The Rehabilitation Measures Database and Instrument Summary Tear-sheets are funded by the National Institute on Disability, Independent Living, and Rehabilitation Research, United States Department of Education through the Rehabilitation Research and Training Center on Improving Measurement of Medical Rehabilitation Outcomes (H133B090024).