Abstract
Objectives
To (1) evaluate perceptions of person-centered care (PCC) in individuals with traumatic
spinal cord injury (SCI); and (2) examine perceived differences in PCC concepts between
patients continuing to receive any services from a Spinal Cord Injury Model Systems
(SCIMS) facility and those who are not.
Design
We used a cross-sectional design, mailed a paper survey, and followed up with a second
mailing to nonrespondents after 4 weeks.
Setting
Community.
Participants
Individuals (N=326) who received initial rehabilitation at an SCIMS facility and agreed
to participate in this research study. We distinguished respondents who received any
SCIMS outpatient services in the past 2 years (SCIMS users, n=137) or longer ago (SCIMS
nonusers, n=189).
Interventions
Not applicable.
Main Outcome Measures
Participants completed the Patient Activation Measure (PAM), the Patient Assessment
of Chronic Illness Care, the Global Practice Experience measure, and 5 Press-Ganey
questions that assessed key elements of patient- and family-centered care.
Results
Patient perspectives of chronic illness care were more positive in the SCIMS users
than nonusers (3.15 vs 2.91, P<.05); the difference is attributable primarily to higher subscale scores on goal
setting and tailoring. The SCIMS users and nonusers did not differ in terms of PAM
overall score or activation stage, Global Practice Experience, or Press-Ganey scores.
Conclusions
SCIMS users and nonusers differed on perceptions of chronic illness care (largely
the goal-setting and tailoring component), which were more favorable for Model System
users than nonusers. Results can guide strategies to enhance PCC practices after inpatient
rehabilitation.
Keywords
List of abbreviations:
CI (confidence interval), PACIC (Patient Assessment of Chronic Illness Care), PAM (Patient Activation Measure), PCC (patient-centered care), RIC (Rehabilitation Institute of Chicago), SCI (spinal cord injury), SCIMS (Spinal Cord Injury Model Systems)To read this article in full you will need to make a payment
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Article info
Publication history
Published online: April 21, 2016
Footnotes
Supported by the Department of Veterans Affairs, Office of Patient-Centered Care and Cultural Transformation, and the Office of Research and Development, Health Services Research and Development, Quality Enhancement Research Initiative (grant no. PEC-13-002). The views expressed in this manuscript are those of the authors and do not necessarily reflect the position or policy of the Department of Veterans Affairs or the United States government.
Disclosures: none.
Identification
Copyright
© 2016 by the American Congress of Rehabilitation Medicine
