Advertisement

Caregiver Factors in Stroke: Are They the Missing Piece of the Puzzle?

Published:February 10, 2016DOI:https://doi.org/10.1016/j.apmr.2016.02.001

      Abstract

      Stroke is a major global health problem and a leading cause of long-term disability. As health care professionals working with these patients, we work closely with their caregivers because we recognize the crucial role they play in our patients' recovery. Increasingly, the effect of patient factors on caregiver outcomes is being studied. However, the effect of the reverse relationship of caregiver factors on patient outcomes has received much less attention, although there is evidence that social and family support can positively (and sometimes negatively) affect patient outcomes. A better understanding of this relationship may have implications for rehabilitation research, professional practice, and policy directions in terms of resource allocation.

      Keywords

      List of abbreviations:

      FDW (foreign domestic worker)
      To read this article in full you will need to make a payment

      Purchase one-time access:

      Academic & Personal: 24 hour online accessCorporate R&D Professionals: 24 hour online access
      One-time access price info
      • For academic or personal research use, select 'Academic and Personal'
      • For corporate R&D use, select 'Corporate R&D Professionals'

      Subscribe:

      Subscribe to Archives of Physical Medicine and Rehabilitation
      Already a print subscriber? Claim online access
      Already an online subscriber? Sign in
      Institutional Access: Sign in to ScienceDirect

      References

        • Buck H.G.
        • Harkness K.
        • Wion R.
        • et al.
        Caregivers' contributions to heart failure self-care: a systematic review.
        Eur J Cardiovasc Nurs. 2015; 14: 79-89
        • Molloy G.J.
        • Johnston D.W.
        • Witham M.D.
        Family caregiving and congestive heart failure. Review and analysis.
        Eur J Heart Fail. 2005; 7: 592-603
        • Gaugler J.E.
        The longitudinal ramifications of stroke caregiving: a systematic review.
        Rehabil Psychol. 2010; 55: 108-125
        • Ostbye T.
        • Malhotra R.
        • Malhotra C.
        • Arambepola C.
        • Chan A.
        Does support from foreign domestic workers decrease the negative impact of informal caregiving? Results from Singapore survey on informal caregiving.
        J Gerontol B Psychol Sci Soc Sci. 2013; 68: 609-621
        • Tsouna-Hadjis E.
        • Vemmos K.N.
        • Zakopoulos N.
        • Stamatelopoulos S.
        First-stroke recovery process: the role of family social support.
        Arch Phys Med Rehabil. 2000; 81: 881-887
        • Yeoh B.S.
        • Huang S.
        Foreign domestic workers and home-based care for elders in Singapore.
        J Aging Soc Policy. 2010; 22: 69-88
        • Dewey H.
        • Thrift A.
        • Mihalopoulos C.
        • et al.
        Informal care for stroke survivors: results from the North East Melbourne Stroke Incidence Study (NEMESIS).
        Stroke. 2002; 33: 1028-1033
        • Galvin R.
        • Cusack T.
        • Stokes E.
        To what extent are family members and friends involved in physiotherapy and the delivery of exercises to people with stroke?.
        Disabil Rehabil. 2009; 31: 898-905
        • Harris J.E.
        • Eng J.J.
        • Miller W.C.
        • Dawson A.S.
        The role of caregiver involvement in upper-limb treatment in individuals with subacute stroke.
        Phys Ther. 2010; 90: 1302-1310
        • Wang T.C.
        • Tsai A.C.
        • Wang J.Y.
        • et al.
        Caregiver-mediated intervention can improve physical functional recovery of patients with chronic stroke: a randomized controlled trial.
        Neurorehabil Neural Repair. 2015; 29: 3-12
        • Koh G.
        • Chen C.
        • Cheong A.
        • et al.
        Trade-offs between effectiveness and efficiency in stroke rehabilitation.
        Int J Stroke. 2012; 7: 606-614
        • Koh G.
        • Lim D.
        • Zhang S.L.
        • et al.
        Predictors of participation in supervised therapy by post-stroke patients in the Singapore community: a one-year cohort study.
        Singapore Fam Med. 2015; 41: 63-74
        • Sebern M.
        • Riegel B.
        Contributions of supportive relationships to heart failure self-care.
        Eur J Cardiovasc Nurs. 2009; 8: 97-104
      1. Wee L, Koh G, Chen C, et al. Caregivers and their impact on inpatient rehabilitation efficiency and effectiveness amongst recent stroke survivors in an urbanised Asian society. Stroke 2012;43(Suppl):A2828.

        • Akalin A.
        Hired as a caregiver, demanded as a housewife becoming a migrant domestic worker in Turkey.
        Eur J Womens Stud. 2007; 14: 209-225
        • Kvist E.
        Changing social organizations of care: a comparison of European policy reforms encouraging paid domestic work.
        Eur J Ageing. 2012; 9: 111-117
        • Ireland P.R.
        Female migrant domestic workers in southern Europe and the Levant: towards an expanded Mediterranean model?.
        Mediterranean Politics. 2011; 16: 343-363
        • Grandea N.
        • Kerr J.
        'Frustrated and displaced': Filipina domestic workers in Canada.
        Gend Dev. 1998; 6: 7-12
      2. Hobson B, Hellgren Z, Bede L. How institutional contexts matter: migration and domestic care services and the capabilities of migrants in Spain and Sweden. FamiliesAndSocieties; 2015. Available at: http://www.familiesandsocieties.eu/wp-content/uploads/2015/11/WP46HobsonEtAl2015.pdf. Accessed December 30, 2015.

        • Glass T.A.
        • Matchar D.B.
        • Belyea M.
        • Feussner J.R.
        Impact of social support on outcome in first stroke.
        Stroke. 1993; 24: 64-70
        • Hinojosa M.S.
        • Rittman M.
        • Hinojosa R.
        • Rodriguez W.
        Racial/ethnic variation in recovery of motor function in stroke survivors: role of informal caregivers.
        J Rehabil Res Dev. 2009; 46: 223-232
        • Pinquart M.
        • Sorensen S.
        Ethnic differences in stressors, resources, and psychological outcomes of family caregiving: a meta-analysis.
        Gerontologist. 2005; 45: 90-106
        • de Leon C.F.
        • Gold D.T.
        • Glass T.A.
        • Kaplan L.
        • George L.K.
        Disability as a function of social networks and support in elderly African Americans and whites: The Duke EPESE 1986–1992.
        J Gerontol B Psychol Sci Soc Sci. 2001; 56: S179-S190
        • Kleinman A.
        • Eisenberg L.
        • Good B.
        Culture, illness, and care: clinical lessons from anthropologic and cross-cultural research.
        Ann Intern Med. 1978; 88: 251-258
        • Mechanic D.
        The concept of illness behaviour: culture, situation and personal predisposition.
        Psychol Med. 1986; 16: 1-7
        • Mechanic D.
        Sociological dimensions of illness behavior.
        Soc Sci Med. 1995; 41: 1207-1216
        • Pachter L.M.
        Culture and clinical care. Folk illness beliefs and behaviors and their implications for health care delivery.
        JAMA. 1994; 271: 690-694
        • de Leon C.F.M.
        • Glass T.A.
        • Beckett L.A.
        • Seeman T.E.
        • Evans D.A.
        • Berkman L.F.
        Social networks and disability transitions across eight intervals of yearly data in the New Haven EPESE.
        J Gerontol B Psychol Sci Soc Sci. 1999; 54: S162-S172