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Review article| Volume 97, ISSUE 3, P462-477.e40, March 2016

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Measuring Participation for Children and Youth With Power Mobility Needs: A Systematic Review of Potential Health Measurement Tools

  • Debra A. Field
    Correspondence
    Corresponding author Debra A. Field, MHScOT, Therapy Department, Sunny Hill Health Centre for Children, 3644 Slocan St, Vancouver, British Columbia, Canada V5M 3E8.
    Affiliations
    Graduate Programs in Rehabilitation Sciences, University of British Columbia, Vancouver, British Columbia, Canada

    Rehabilitation Research Program, GF Strong Rehabilitation Centre, Vancouver, British Columbia, Canada

    Therapy Department, Sunny Hill Health Centre for Children, Vancouver, British Columbia, Canada
    Search for articles by this author
  • William C. Miller
    Affiliations
    Graduate Programs in Rehabilitation Sciences, University of British Columbia, Vancouver, British Columbia, Canada

    Rehabilitation Research Program, GF Strong Rehabilitation Centre, Vancouver, British Columbia, Canada

    Department of Occupational Science and Occupational Therapy, University of British Columbia, Vancouver, British Columbia, Canada
    Search for articles by this author
  • Stephen E. Ryan
    Affiliations
    Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Ontario, Canada

    Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, Ontario, Canada

    Rehabilitation Sciences Institute, University of Toronto, Toronto, Ontario, Canada
    Search for articles by this author
  • Tal Jarus
    Affiliations
    Graduate Programs in Rehabilitation Sciences, University of British Columbia, Vancouver, British Columbia, Canada

    Department of Occupational Science and Occupational Therapy, University of British Columbia, Vancouver, British Columbia, Canada
    Search for articles by this author
  • Alex Abundo
    Affiliations
    Rehabilitation Research Program, GF Strong Rehabilitation Centre, Vancouver, British Columbia, Canada
    Search for articles by this author
Published:September 10, 2015DOI:https://doi.org/10.1016/j.apmr.2015.08.428

      Abstract

      Objectives

      To identify and critically appraise potential participation measurement tools for children aged 18 months to 17 years with power mobility (PM) needs.

      Data Sources

      Searches in 9 electronic databases identified peer-reviewed publications in English to January 2015, along with hand-searching included bibliographies.

      Study Selection

      The Preferred Reporting Items for Systematic reviews and Meta-Analyses statement was followed with inclusion criteria set a priori. Keywords and subject headings included participation and measurement terms with descriptors of young people who are potential PM candidates. Publications describing measurement properties of English-language tools were included if the items included ≥85% content related to participation and described at least 2 participation dimensions.

      Data Extraction

      Two reviewers reached consensus after independently screening titles and abstracts, identifying full-text articles meeting criteria, extracting data, and conducting quality ratings. Tool descriptions, clinical utility, and measurement properties were extracted. Study quality and measurement properties were evaluated using the COnsensus-based Standards for the selection of health Measurement INstruments checklist and the McMaster Outcome Measures Rating Form.

      Data Synthesis

      Of 1330 titles identified, 138 peer-reviewed publications met study inclusion criteria. Fifty tools were identified, of which 20 met inclusion criteria. Evidence supporting reliability and validity varied considerably. Two tools had responsiveness evidence, an important measurement property when evaluating change. Quality ratings were strongest for internal consistency and content validity. Ratings were downgraded because of small sample sizes and a limited description of missing data or study conditions.

      Conclusions

      While potential tools emerged (Assessment of Preschool Children's Participation, Preferences for Activities of Children, Child and Adolescent Scale of Participation, Child Engagement in Daily Life, Canadian Occupational Performance Measure, Questionnaire of Young People's Participation), none were judged best suited for use with children having PM needs. Further empirical studies with this population are needed before recommending use for PM applications.

      Keywords

      List of abbreviations:

      COPM (Canadian Occupational Performance Measure), COSMIN (COnsensus-based Standards for the selection of health Measurement INstruments), ICF (International Classification of Functioning, Disability, and Health), OMRF (McMaster Outcome Measures Rating Form), PM (power mobility)
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