Abstract
Objectives
To identify key dimensions of patients' experience across the rehabilitative care
system and to recommend a framework to develop survey items that measure the rehabilitative
care experience.
Data Sources
Data were sourced from a literature review that searched MEDLINE (PubMed), CINAHL
(Ebsco), and PsycINFO (APA PsycNET) databases from 2004 to 2014, the reference lists
of the final accepted articles, and hand searches of relevant journals.
Study Selection
Four reviewers performed the screening process on 2472 articles; 33 were included
for analysis. Interrater reliability was confirmed through 2 rounds of title review
and 1 round of abstract review, with an average κ score of .69.
Data Extraction
The final sample of 33 accepted articles was imported into a qualitative data analysis
software application. Multiple levels of coding and a constant comparative methodology
generated 6 themes. There were 502 discreet survey questions measuring patient experience
that were categorized using the following dimensions: rehabilitative care ecosystem,
client and informal caregiver engagement, patient and health care provider relation,
pain and functional status, group and individual identity, and open ended.
Data Synthesis
The most common survey questions examine the care delivery ecosystem (37%), the engagement
of clients and their informal caregivers (24.9%), and the quality of relations between
providers and patients (21.7%). Examination of patient's functional status and management
of pain yielded (15.3%) of the instruments' questions.
Conclusions
Currently available instruments and questions that measure patients' experience in
rehabilitative care are unable to assess the performance of rehabilitative delivery
systems that aspire to integrate care across the continuum. However, question panels
derived from our 6 key themes may measure the key concepts that define rehabilitative
care and facilitate measurement of patient experience at the system level.
Keywords
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Article info
Publication history
Published online: August 17, 2015
Footnotes
Supported by a grant from the Waterloo Wellington Local Health Integration Network's Rehabilitative Care Council.
Disclosures: none.
Identification
Copyright
© 2016 American Congress of Rehabilitation Medicine. Published by Elsevier Inc. All rights reserved.
