Abstract
Objectives
Design
Setting
Participants
Interventions
Main Outcome Measures
Results
Conclusions
Keywords
List of abbreviations:
HRQOL (health-related quality of life), PRO (patient-reported outcome), PROMIS (Patient Reported Outcomes Measurement Information System), TBI (traumatic brain injury)Purchase one-time access:
Academic & Personal: 24 hour online accessCorporate R&D Professionals: 24 hour online accessOne-time access price info
- For academic or personal research use, select 'Academic and Personal'
- For corporate R&D use, select 'Corporate R&D Professionals'
Subscribe:
Subscribe to Archives of Physical Medicine and RehabilitationReferences
- Traumatic brain injury in the United States: emergency department visits, hospitalizations, and deaths.Dept of Health and Human Services, Centers for Disease Control and Prevention, National Center for Injury Prevention and Control, Atlanta2004
- Trends in death associated with traumatic brain injury, 1979 through 1992. Success and failure.JAMA. 1995; 273: 1778-1780
- Epidemiology of traumatic brain injury.in: Zasler N.D. Katz D.I. Zafonte R.D. Brain injury medicine: principles and practice. 2nd ed. Demos, New York2007: 373-405
- Traumatic brain injury-related hospital discharges. Results from a 14-state surveillance system, 1997.MMWR Surveill Summ. 2003; 52: 1-20
- Stress and coping among families of patients with traumatic brain injury: a review of the literature.J Clin Nurs. 2005; 14: 1004-1012
- Wives' coping flexibility, time since husbands' injury and the perceived burden of wives of men with traumatic brain injury.Brain Inj. 2005; 19: 59-66
- The relationship between neurobehavioural problems of severe traumatic brain injury (TBI), family functioning and the psychological well-being of the spouse/caregiver: path model analysis.Brain Inj. 2002; 16: 743-757
- Caregivers' well-being after traumatic brain injury: a multicenter prospective investigation.Arch Phys Med Rehabil. 2009; 90: 939-946
- Family functioning and emotional state two and five years after traumatic brain injury.J Int Neuropsychol Soc. 2010; 16: 306-317
- Caregiver burden at 6 months following severe traumatic brain injury.Brain Inj. 1998; 12: 225-238
- Three months after severe head injury: psychiatric and social impact on relatives.J Neurol Neurosurg Psychiatry. 1985; 48: 870-875
- Caregiver burden at 1 year following severe traumatic brain injury.Brain Inj. 1998; 12: 1045-1059
- Brain injury - the perceived health of carers.Disabil Rehabil. 2000; 22: 683-689
- Predictors of caregiver burden following traumatic brain injury.Brain Inj. 2002; 16: 1039-1050
- Traumatic brain injury caregiver distress and use of support services.J Head Trauma Rehabil. 2006; 21: 432-433
- Psychological distress and family satisfaction following traumatic brain injury: injured individuals and their primary, secondary, and tertiary carers.J Head Trauma Rehabil. 2000; 15: 909-929
- Caregiving appraisal after traumatic brain injury: the effects of functional status, coping style, social support and family functioning.NeuroRehabilitation. 2007; 22: 43-52
- Long-term adjustment of families following traumatic brain injury where comprehensive rehabilitation has been provided.Brain Inj. 2003; 17: 453-468
- Caregiver depression following traumatic brain injury (TBI): a consequence of adverse effects on family members?.Brain Inj. 2001; 15: 223-238
- Relationship of family functioning to progress in a post-acute rehabilitation programme following traumatic brain injury.Brain Inj. 2002; 16: 649-657
- Predictors of family system functioning after brain injury.Brain Inj. 2006; 20: 587-600
- Networks of social support and the outcome from severe head injury.J Head Trauma Rehabil. 1987; 2: 14-23
- The Los-Angeles Head-Injury Survey: procedures and initial findings.Arch Phys Med Rehabil. 1988; 69: 425-431
- Living with the characterologically altered brain injured patient.J Clin Psychiatry. 1978; 39: 592-598
- Late outcome of very severe blunt head trauma: a 10-15 year second follow-up.J Neurol Neurosurg Psychiatry. 1984; 47: 260-268
- Social support moderates caregiver life satisfaction following traumatic brain injury.J Clin Exp Neuropsychol. 2003; 25: 1090-1101
- Long-term life quality and family needs after traumatic brain injury.J Head Trauma Rehabil. 2001; 16: 374-385
- The adversarial alliance: developing therapeutic relationships between families and the team in brain injury rehabilitation.Brain Inj. 1993; 7: 45-51
- Depression, social support, and family coping following traumatic brain injury.Brain Cognition. 2000; 44: 45-49
- Impact of traumatic brain damage on family dynamics and functioning: a review.Brain Inj. 1989; 3: 219-233
- Relationship of caregiver and family functioning to participation outcomes after postacute rehabilitation for traumatic brain injury: a multicenter investigation.Arch Phys Med Rehabil. 2012; 93: 842-848
- Relationship of preinjury caregiver and family functioning to community integration in adults with traumatic brain injury.Arch Phys Med Rehabil. 2010; 91: 1542-1550
- Effects of family and caregiver psychosocial functioning on outcomes in persons with traumatic brain injury.J Head Trauma Rehabil. 2011; 26: 20-29
- The relationship between caregiver burden and TBI survivors' cognition and functional ability after discharge.Rehabil Nurs. 1998; 23: 252-257
- Measuring quality of life in palliative care.Semin Oncol. 1995; 22: 73-81
- Brief Symptom Inventory 18 (BSI 18): administration, scoring, and procedures manual.NCS Pearson, Minneapolis2001
- Manual of the General Health Questionnaire.National Foundation for Education Research Publishing, Windsor1978
- The hidden victims of Alzheimer's disease: families under stress.New York Univ Pr, New York1985
- Caregiving and the experience of subjective and objective burden.Fam Relat. 1985; 34: 19-26
- Psychosocial consequences of caring for a spouse with multiple sclerosis.J Clin Exp Neuropsychol. 1997; 19: 7-19
- The CarerQol instrument: a new instrument to measure care-related quality of life of informal caregivers for use in economic evaluations.Qual Life Res. 2006; 15: 1005-1021
- A critical analysis of measures of caregiver and family functioning following traumatic brain injury.J Neurosci Nurs. 2009; 41: 148-158
- The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005-2008..J Clin Epidemiol. 2010; 63: 1179-1194
- The Patient-Reported Outcomes Measurement Information System (PROMIS): progress of an NIH Roadmap cooperative group during its first two years.Med Care. 2007; 45: S3-S11
- The future of outcomes measurement: Item banking, tailored short-forms, and computerized adaptive assessment..Qual Life Res. 2007; 16 Suppl 1: 133-141
- Patient-reported outcomes: conceptual issues.Value Health. 2007; (10 Suppl 2:S66-S75)
- Patient-reported outcomes: instrument development and selection issues.Value Health. 2007; (10 Suppl 2:S86-S93)
- Traumatic Brain Injury Model Systems National Data Base Inclusion Criteria.2006 (Available at: https://www.tbindsc.org/StaticFiles/Documents/2014%20TBIMS%20Slide%20Presentation.pdf. Accessed October 14, 2014)
- Focus group interview: an underutilized research technique for improving theory and practice in health education.Health Educ Q. 1987; 14: 411-448
- Figuring things out.Addison-Wesley, Reading1985
- Impact of blood pressure dysregulation on health-related quality of life in persons with spinal cord injury: development of a conceptual model.Arch Phys Med Rehabil. 2013; 94: 1721-1730
- Traumatic brain injury patient-reported outcome measure: identification of health-related quality-of-life issues relevant to individuals with traumatic brain injury.Arch Phys Med Rehabil. 2011; 92: S52-60
- Opportunities for CAT applications in medical rehabilitation: development of targeted item banks.J Appl Meas. 2010; 11: 315-330
- Identification of health-related quality of life (HRQOL) issues relevant to individuals with Huntington disease.J Health Psychol. 2013; 18: 212-225
- The discovery of grounded theory: strategies for qualitative research.Aldine Transaction, New Brunswick1967
- Basics of qualitative research: techniques and procedures for developing grounded theory.2nd ed. Sage, Thousand Oaks1998
Grad FP. The Preamble to the Constitution of the World Health Organization Bulletin of the World Health Organization 2002;80:981-4.
PROMIS Instrument Development and Psychometric Evaluation Scientific Standards. http://www.nihpromis.org/Documents/PROMIS_Standards_050212.pdf?AspxAutoDetectCookieSupport=1. Accessed October 14, 2014.
- New English and Spanish Social Health Measures Will Facilitate Evaluating Health Determinants.Health Psychol. 2014; 33: 490-499
Article info
Publication history
Footnotes
Supported by the National Institutes of Health (grant no. 05R01NR013658).
The content of this article is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health, the official policy of the Department of Defense, the official views of the Department of Veterans' Affairs, or the official views of the U.S. Government.
Disclosures: none.