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Measurement Tools for Adherence to Non-Pharmacologic Self-Management Treatment for Chronic Musculoskeletal Conditions: A Systematic Review

Published:August 06, 2014DOI:https://doi.org/10.1016/j.apmr.2014.07.405

      Abstract

      Objectives

      To identify measures of adherence to nonpharmacologic self-management treatments for chronic musculoskeletal (MSK) populations; and to report on the measurement properties of identified measures.

      Data Sources

      Five databases were searched for all study types that included a chronic MSK population, unsupervised intervention, and measure of adherence.

      Study Selection

      Two independent researchers reviewed all titles for inclusion using the following criteria: adult (>18y) participants with a chronic MSK condition; intervention, including an unsupervised self-management component; and measure of adherence to the unsupervised self-management component.

      Data Extraction

      Descriptive data regarding populations, unsupervised components, and measures of unsupervised adherence (items, response options) were collected from each study by 1 researcher and checked by a second for accuracy.

      Data Synthesis

      No named or referenced adherence measurement tools were found, but a total of 47 self-invented measures were identified. No measure was used in more than a single study. Methods could be grouped into the following: home diaries (n=31), multi-item questionnaires (n=11), and single-item questionnaires (n=7). All measures varied in type of information requested and scoring method. The lack of established tools precluded quality assessment of the measurement properties using COnsensus-based Standards for the selection of health Measurement INstruments methodology.

      Conclusions

      Despite the importance of adherence to self-management interventions, measurement appears to be conducted on an ad hoc basis. It is clear that there is no consistency among adherence measurement tools and that the construct is ill-defined. This study alerts the research community to the gap in measuring adherence to self-care in a rigorous and reproducible manner. Therefore, we need to address this gap by using credible methods (eg, COnsensus-based Standards for the selection of health Measurement INstruments guidelines) to develop and evaluate an appropriate measure of adherence for self-management.

      Keywords

      List of abbreviations:

      COSMIN (COnsensus-based Standards for the selection of health Measurement INstruments), HCP (health care professional), MSK (musculoskeletal), WHO (World Health Organization)
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      References

        • World Health Organization Scientific Group
        Adherence to long-term therapies: evidence for action.
        World Health Organization, Geneva (Switzerland)2003
        • Lorig K.R.
        • Holman H.
        Self-management education: history, definition, outcomes, and mechanisms.
        Ann Behav Med. 2003; 26: 1-7
        • Hochberg M.C.
        • Altman R.D.
        • April K.T.
        • et al.
        American College of Rheumatology 2012 recommendations for the use of nonpharmacological therapies in osteoarthritis of the hand, hip, and knee.
        Arthritis Care Res (Hoboken). 2012; 64: 465-474
        • Koes B.W.
        • van Tulder M.
        • Lin C.W.
        • Macedo L.G.
        • McAuley J.
        • Maher C.
        An updated overview of clinical guidelines for the management of non-specific low back pain in primary care.
        Eur Spine J. 2010; 19: 2075-2094
        • Frih Z.
        • Fendri Y.
        • Jellad A.
        • Boudoukhane S.
        • Rejeb N.
        Efficacy and treatment compliance of a home-based rehabilitation programme for chronic low back pain: a randomized, controlled study.
        Ann Phys Rehabil Med. 2009; 52: 485-496
        • Kolt G.S.
        • McEvoy J.F.
        Adherence to rehabilitation in patients with low back pain.
        Man Ther. 2003; 8: 110-116
        • Jordan J.L.
        • Holden M.A.
        • Mason E.E.
        • Foster N.E.
        Interventions to improve adherence to exercise for chronic musculoskeletal pain in adults.
        Cochrane Database Syst Rev. 2010; : CD005956
        • Terwee C.B.
        • Mokkink L.B.
        • Knol D.L.
        • Ostelo R.W.
        • Bouter L.M.
        • de Vet H.C.
        Rating the methodological quality in systematic reviews of studies on measurement properties: a scoring system for the COSMIN checklist.
        Qual Life Res. 2012; 21: 651-657
        • Falla D.
        • Jull G.
        • Russel T.
        • Vicenzino B.
        • Hidges P.
        Effect of neck exercise on sitting posture in patients with chronic neck pain.
        Phys Ther. 2007; 87: 408-417
        • Geisser M.
        • Wiggert E.
        • Haig A.
        • Colwell M.O.
        A randomized controlled trial of manual therapy and specific adjuvant exercise for chronic low back pain.
        Clin J Pain. 2005; 21: 463-470
        • Hakkinen A.
        • Ylinen J.
        • Kautiainen H.
        • Tarvainen U.
        • Kiviranta I.
        Effects of home strength training and stretching versus stretching alone after lumbar disk surgery: a randomized study with a 1-year follow-up.
        Arch Phys Med Rehabil. 2005; 86: 865-870
        • Humphreys B.K.
        • Irgens P.M.
        The effect of a rehabilitation exercise program on head repositioning accuracy and reported levels of pain in chronic neck pain subjects.
        Journal of Whiplash and Related Disorders. 2002; 1: 99-112
        • Iverson M.D.
        • Fossel A.H.
        • Katz J.N.
        Enhancing function in older adults with chronic low back pain: a pilot study of endurance training.
        Arch Phys Med Rehabil. 2003; 84: 1324-1331
        • Wand B.M.
        • O'Connell N.E.
        • Di Pietro F.
        • Bulsara M.
        Managing chronic nonspecific low back pain with a sensorimotor retraining approach: exploratory multiple-baseline study of 3 participants.
        Phys Ther. 2011; 91: 535-546
        • Williams K.
        • Abildso C.
        • Steinberg L.
        • et al.
        Evaluation of the effectiveness and efficacy of Iyengar yoga therapy on chronic low back pain.
        Spine (Phila Pa 1976). 2009; 34: 2066-2076
        • Arokoski J.P.
        • Valta T.
        • Kankaanpaa M.
        • Airaksinen O.
        Activation of lumbar paraspinal and abdominal muscles during therapeutic exercises in chronic low back pain patients.
        Arch Phys Med Rehabil. 2004; 85: 823-832
        • Basler H.D.
        • Bertalanffy H.
        • Quint S.
        • Wilke A.
        • Wolf U.
        TTM-based counselling in physiotherapy does not contribute to an increase of adherence to activity recommendations in older adults with chronic low back pain–a randomised controlled trial.
        Eur J Pain. 2007; 11: 31-37
        • Friedrich M.
        • Gittler G.
        • Halberstadt Y.
        • Cermak T.
        • Heiller L.
        Combined exercise and motivation program: effect on the compliance and level of disability of patients with chronic low back pain: a randomized controlled trial.
        Arch Phys Med Rehabil. 1998; 79: 475-487
        • Friedrich M.
        • Gittler G.
        • Arendasy M.
        • Friedrich K.M.
        Long-term effect of a combined exercise and motivational program on the level of disability of patients with chronic low back pain.
        Spine (Phila Pa 1976). 2005; 30: 995-1000
        • Pons T.
        • Shipton E.A.
        Multilevel lumbar fusion and postoperative physiotherapy rehabilitation in a patient with persistent pain.
        Physiother Theory Pract. 2011; 27: 238-245
        • Vong S.K.
        • Cheing G.L.
        • Chan F.
        • So E.M.
        • Chan C.C.
        Motivational enhancement therapy in addition to physical therapy improves motivational factors and treatment outcomes in people with low back pain: a randomized controlled trial.
        Arch Phys Med Rehabil. 2011; 92: 176-183
        • Carson J.W.
        • Keefe F.J.
        • Lynch T.R.
        • et al.
        Loving-kindness meditation for chronic low back pain: results from a pilot trial.
        J Holist Nurs. 2005; 23: 287-304
        • Evans D.D.
        • Carter M.
        • Panico R.
        • Kimble L.
        • Morlock J.T.
        • Spears M.J.
        Characteristics and predictors of short-term outcomes in individuals self-selecting yoga or physical therapy for treatment of chronic low back pain.
        PM R. 2010; 2: 1006-1015
        • Hakkinen A.
        • Kautiainen H.
        • Hannonen P.
        • Ylinen J.
        Strength training and stretching versus stretching only in the treatment of patients with chronic neck pain: a randomized one-year follow-up study.
        Clin Rehabil. 2008; 22: 592-600
        • Rosenzweig S.
        • Greeson J.M.
        • Reibel D.K.
        • Green J.S.
        • Jasser S.A.
        • Beasley D.
        Mindfulness-based stress reduction for chronic pain conditions: variation in treatment outcomes and role of home meditation practice.
        J Psychosom Res. 2010; 68: 29-36
        • Ylinen J.J.
        • Takala E.P.
        • Nykanen M.J.
        • Kautiainen H.J.
        • Hakkinen A.H.
        • Airaksinen O.V.
        Effects of twelve-month strength training subsequent to twelve-month stretching exercise in treatment of chronic neck pain.
        J Strength Cond Res. 2006; 20: 304-308
        • Jungquist C.R.
        • O’Brien C.
        • Matteson-Rusby S.
        • et al.
        The efficacy of cognitive-behavioral therapy for insomnia in patients with chronic pain.
        Sleep Med. 2010; 11: 302-309
        • Genet F.
        • Poiraudeau S.
        • Revel M.
        [Effectiveness and compliance to a center-based short rehabilitation program with a home-based program for chronic low back pain].
        Ann Readapt Med Phys. 2002; 45 ([French]): 265-272
        • Jull G.A.
        • Falla D.
        • Vicenzino B.
        • Hodges P.W.
        The effect of therapeutic exercise on activation of the deep cervical flexor muscles in people with chronic neck pain.
        Man Ther. 2009; 14: 696-701
        • Schoo A.M.
        • Morris M.E.
        • Bui Q.M.
        The effects of mode of exercise instruction on compliance with a home exercise program in older adults with osteoarthritis.
        Physiotherapy. 2005; 91: 79-86
        • Sherman K.
        • Cherkin D.C.
        • Erro J.
        • Miglioretti D.L.
        • Deyo R.A.
        Comparing yoga, exercise and a self-care book for chronic low back pain.
        Ann Intern Med. 2005; 143: 849-856
        • Söderlund A.
        • Lindberg P.
        Cognitive behavioural components in physiotherapy management of chronic whiplash associated disorders (WAD)–a randomized group study.
        Physiother Theor Pract. 2001; 17: 229-238
        • Sokup M.
        • Glomsrod B.
        • Lonn J.H.
        • Bo K.
        • Larsen S.
        The effect of a Mensendieck exercise program as secondary prophylaxis for recurrent low back pain.
        Spine (Phila Pa 1976). 1999; 24 (discussion 1592): 1585-1591
        • Talbot L.
        • Gaines J.
        • Huynh T.N.
        • Metter E.J.
        A home based pedometer-driven walking program to increase physical activity in older adults with osteoarthritis of the knee: a preliminary study.
        J Am Geriatric Soc. 2003; 51: 387-392
        • Ylinen J.
        • Takala E.P.
        • Nykanen M.
        • et al.
        Active neck muscle training in the treatment of chronic neck pain in women.
        JAMA. 2003; 289: 2509-2516
        • Viljanen M.
        • Malmivaara A.
        • Uitti J.
        • Rhinne M.
        • Palmroos P.
        • Laippala P.
        Effectiveness of dynamic muscle training, relaxation training, or ordinary activity for chronic neck pain: randomized controlled trial.
        BMJ. 2003; 327: 475
        • Koumantakis G.
        • Watson P.
        • Oldham J.
        Supplementation of general endurance with stabilization training versus general exercise only physiological and functional outcomes of a randomized controlled trial of patients with recurrent low back pain.
        Clin Biomech. 2006; 20: 474-482
        • Ettinger W.H.
        • Burns R.
        • Messier S.P.
        • Applegate W.
        • Rejeski W.J.
        • Morgan T.
        A randomized trial comparing aerobic exercise and resistance exercise with a health education program in older adults with knee osteoarthritis.
        JAMA. 1997; 277: 25-31
        • Rejeski W.J.
        • Brawley L.R.
        • Ettinger W.
        • Morgan T.
        • Thompson C.
        Compliance to exercise therapy in older participants with knee osteoarthritis: implications for treating disability.
        Med Sci Sports Exerc. 1997; 29: 977-985
        • Frih Z.B.
        • Fendri Y.
        • Jellad A.
        • Boudoukhane S.
        • Rejeb N.
        Efficacy and treatment compliance of a home-based rehabilitation programme for chronic low back pain: a randomized, controlled study.
        Ann Phys Rehabil Med. 2009; 52: 485-496
        • Djavid G.E.
        • Mehrdad R.
        • Ghasemi M.
        • Hasan-Zadeh H.
        • Sotoodeh-Manesh A.
        • Pouryaghoub G.
        In chronic low back pain, low level laser therapy combined with exercise is more beneficial than exercise alone in the long term: a randomised trial.
        Aust J Physiother. 2007; 53: 155-160
        • Geraets J.J.
        • Goosens M.E.
        • van Haastregt J.C.
        • et al.
        Implications of process evaluation for clinical effectiveness and clinical practice in a trial on chronic shoulder complaints.
        Patient Educ Couns. 2006; 61: 117-125
        • Groessl E.J.
        • Weingart K.R.
        • Aschbacher K.
        • Pada L.
        • Baxi S.
        Yoga for veterans with chronic low-back pain.
        J Altern Complement Med. 2008; 14: 1123-1129
        • Snook S.H.
        • Webster B.S.
        • McGorry R.W.
        The reduction of chronic, nonspecific low back pain through the control of early morning lumbar flexion: 3-year follow-up.
        J Occup Rehabil. 2002; 12: 13-19
        • Nelson B.W.
        • O'Reilly E.
        • Miller M.
        • Hogan M.
        • Wegner J.A.
        • Kelly C.
        The clinical effects of intensive, specific exercise on chronic low back pain: a controlled study of 895 consecutive patients with 1-year follow up.
        Orthopedics. 1995; 18: 971-981
        • Barlow J.H.
        • Turner A.P.
        • Wright C.C.
        Long-term outcomes of an arthritis self-management programme.
        Brit J Rheumatol. 1998; 37: 1315-1319
        • Cakmak A.
        • Muslimanoglu L.
        • Ozcan E.
        • et al.
        The long term outcome of the back school in patients with chronic mechanical low back pain.
        J Back Musculoskelet Rehabil. 2004; 17: 83-89
        • Escolar-Reina P.
        • Medina-Mirapeix F.
        • Gascon-Canovas J.J.
        • Montilla-Herrador J.
        • Valera-Garrido J.F.
        • Collins S.M.
        Self-management of chronic neck and low back pain and relevance of information provided during clinical encounters: an observational study.
        Arch Phys Med Rehabil. 2009; 90: 1734-1739
        • Hartigan C.
        • Rainville J.
        • Sobel J.B.
        • Hipona M.
        Long-term exercise adherence after intensive rehabilitation for chronic low back pain.
        Med Sci Sports Exerc. 2000; 32: 551-557
        • Hughes S.L.
        • Seymour R.B.
        • Campbell R.T.
        • et al.
        Long-term impact of fit and strong: on older adults with osteoarthritis.
        Gerontologist. 2006; 46: 801-814
        • Pisters M.F.
        • Veenhof C.
        • Schellevis F.G.
        • Twisk J.W.
        • Dekker J.
        • de Bakker D.R.
        Exercise adherence improving long-term patient outcome in patients with osteoarthritis of the hip and/or knee.
        Arthritis Care Res. 2010; 62: 1087-1094
        • Taimela S.
        • Diederich C.
        • Hubsch M.
        • Heinricy M.
        The role of physical exercise and inactivity in pain recurrence and absenteeism from work after active outpatient rehabilitation for recurrent or chronic low back pain: a follow-up study.
        Spine (Phila Pa 1976). 2000; 25: 1809-1816
        • Harkapaa K.
        • Mellin G.
        • Jarvikoski A.
        • Hurri H.
        A controlled study on the outcome of inpatient and outpatient treatment of low back pain. Part III. Long term follow-up of pain disability and compliance.
        Scan J Rehabil Med. 1990; 22: 182-188
        • Fekete E.M.
        • Stephens M.A.
        • Druley J.A.
        • Greene K.A.
        Effects of spousal control and support on older adults’ recovery from knee surgery.
        J Fam Psychol. 2006; 20: 302-310
        • Levine D.M.
        • Green L.W.
        • Deeds S.G.
        • Chwalow J.
        • Russel R.P.
        • Finlay J.
        Health education for hypertensive patients.
        JAMA. 1979; 241: 1700-1703
        • Morisky D.
        • Green L.
        • Levine D.
        Concurrent and predictive validity of a self-reported measure of medication adherence.
        Med Care. 1986; 24: 67-74
        • Gregoire J.
        • Guibert R.
        • Archambault A.
        • Contradriopoulos A.
        Medication compliance in a family practice.
        Can Fam Physician. 1992; 38: 2333-2337
        • Brewer B.
        • Avondoglio J.
        • Cornelius A.
        • et al.
        Construct validity and interrater agreement of the sport injury rehabilitation adherence scale.
        J Sport Rehabil. 2002; 11: 170-178
        • Kolt G.
        • Brewer B.
        • Pizzari T.
        • Schoo A.
        • Garrett N.
        The Sport Injury Rehabilitation Adherence Scale: a reliable scale for use in clinical physiotherapy.
        Physiotherapy. 2007; 93: 17-22
        • Tarlov A.R.
        • Ware J.E.
        • Greenfield S.
        • Nelson E.C.
        • Perrin E.
        • Zubkoff M.
        The Medical Outcomes Study. An application of methods for monitoring the results of medical care.
        JAMA. 1989; 262: 925-930
        • De Vet H.C.
        • Terwee C.B.
        • Mokkink L.B.
        • Knol D.L.
        Measurement in medicine: a practical guide.
        Cambridge Univ Pr, New York2011