Abstract
Participation is a key indicator of health and well-being and a critical rehabilitation
goal for individuals with disabilities. Despite the numerous participation measures
that have been developed, there is still an absence of agreement on the definition,
domains, and dimensions of this construct. The result is that instruments intending
to measure the same construct may actually measure quite different aspects of daily
life and therefore yield significantly different findings. A solid conceptual model
is needed to provide consistent guidance for measurement selection and development.
In this article we identify the relevant content areas of participation and propose
a conceptual model for adults that is intended to apply across diagnoses, conditions,
and settings. We classified participation into 3 main domains: work and education,
household, and community. Subdomains are defined within each. The model was reviewed
using a semistructured survey by 8 rehabilitation measurement experts. Their feedback
regarding the relevance, clarity, and comprehensiveness of the model led to the creation
of an alternative structure in which the 3 main domains were recategorized as productivity,
social, and community. The proposed conceptual model provides a clear framework for
practitioners and researchers to understand the concept of participation and to guide
selection or development of measures.
Keywords
List of abbreviations:
ICF (International Classification of Functioning, Disability and Health), IRT (item response theory), POPS (Participation Objective, Participation Subjective)To read this article in full you will need to make a payment
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Article info
Publication history
Published online: May 28, 2014
Footnotes
Supported by a Department of Education (National Institute on Disability and Rehabilitation Research) advanced rehabilitation research and training grant (grant no. H133P120001) (principal investigator: Dr. Alan Jette).
Disclosures: none.
Identification
Copyright
© 2014 American Congress of Rehabilitation Medicine. Published by Elsevier Inc. All rights reserved.
