From the editors' desk| Volume 95, ISSUE 9, P1601-1602, September 2014

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21st Century Challenges to the Provision of Health Care to Adults With Spina Bifida: A Rehabilitation Approach

  • Brad E. Dicianno
    Corresponding author Brad E. Dicianno, MD, 3471 5th Ave, Ste 202, Pittsburgh, PA 15213.
    Department of Physical Medicine and Rehabilitation; and the Adult Spina Bifida Clinic, University of Pittsburgh Medical Center, Pittsburgh, PA
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Published:January 31, 2014DOI:
      In 1999 in Archives of Physical Medicine and Rehabilitation, Joel DeLisa, MD,
      • DeLisa J.A.
      The 31st Walter J. Zeiter Lecture. Issues and challenges for physiatry in the coming decade.
      discussed “Issues and Challenges for Physiatry in the Coming Decade.” He proposed that physiatrists should play a key role in the coordination of care for adults with disabilities from conditions such as spina bifida. The Archives has published a series of articles that are instrumental in guiding how physiatrists can be leaders in this area. In this editorial, I would like to highlight these articles from Archives and some additional articles, as a special topic collection.
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        • DeLisa J.A.
        The 31st Walter J. Zeiter Lecture. Issues and challenges for physiatry in the coming decade.
        Arch Phys Med Rehabil. 1999; 80: 1-12
        • Starfield B.
        • Shi L.
        The medical home, access to care, and insurance: a review of evidence.
        Pediatrics. 2004; 113: 1493-1498
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        Specialty care medical homes for people with severe, persistent mental disorders.
        Health Aff (Millwood). 2010; 29: 867-873
      1. Spina Bifida Association Web site. Available at: Accessed December 1, 2013.

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        The future of the multidisciplinary clinic.
        ScientificWorldJournal. 2007; 7: 1752-1756
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        • Kurowski B.G.
        • Yang J.M.J.
        • et al.
        Rehabilitation and medical management of the adult with spina bifida.
        Am J Phys Med Rehabil. 2008; 87: 1027-1050
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        • William O.
        Primary care providers and medical homes for individuals with spina bifida.
        J Pediatr Rehabil Med. 2008; 1: 337-344
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        Medical care of adults with spina bifida.
        J Pediatr Rehabil Med. 2009; 2: 3-11
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        Optimizing health care for adults with spina bifida.
        Dev Disabil Res Rev. 2010; 16: 76-81
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        • Barden W.S.
        • Burke T.A.
        • Young N.L.
        What do we really know about the transition to adult-centered health care? A focus on cerebral palsy and spina bifida.
        Arch Phys Med Rehabil. 2007; 88: 1064-1073
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        Disbanding a multidisciplinary clinic: effects on the health care of myelomeningocele patients.
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        Hospitalizations of adults with spina bifida and congenital spinal cord anomalies.
        Arch Phys Med Rehabil. 2010; 91: 529-535
        • Wilson R.
        • Lewis S.A.
        • Dicianno B.E.
        Targeted preventive care may be needed for adults with congenital spine anomalies.
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        • Anselmo L.A.
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        Youth and young adults with spina bifida: their utilization of physician and hospital services.
        Arch Phys Med Rehabil. 2014; 95: 466-471
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        • Wilson P.E.
        Aging with a disability.
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        Osteoporosis in adults with meningomyelocele: an unrecognized problem at rehabilitation clinics.
        Arch Phys Med Rehabil. 2006; 87: 376-382
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        Cardiovascular disease risk factors and the relationships with physical activity, aerobic fitness, and body fat in adolescents and young adults with myelomeningocele.
        Arch Phys Med Rehabil. 2008; 89: 2167-2173
        • Findley T.W.
        • Agre J.C.
        Ambulation in the adolescent with spina bifida. II. Oxygen cost of mobility.
        Arch Phys Med Rehabil. 1988; 69: 855-861
        • Verhoef M.
        • Barf H.A.
        • Vroege J.A.
        • et al.
        Sex education, relationships, and sexuality in young adults with spina bifida.
        Arch Phys Med Rehabil. 2005; 86: 979-987
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        • Topolski T.D.
        • White C.J.
        • McLaughlin J.F.
        • Walker W.O.
        Sexual functioning in adolescents and young adults with spina bifida.
        Arch Phys Med Rehabil. 2008; 89: 31-35
        • King J.C.
        • Currie D.M.
        • Wright E.
        Bowel training in spina bifida: importance of education, patient compliance, age, and anal reflexes.
        Arch Phys Med Rehabil. 1994; 75: 243-247
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        Perspectives on transitions: rethinking services for children and youth with developmental disabilities.
        Arch Phys Med Rehabil. 2007; 88: 1080-1082