21st Century Challenges to the Provision of Health Care to Adults With Spina Bifida: A Rehabilitation Approach

References

1. • DeLisa J.A.
   The 31st Walter J. Zeiter Lecture. Issues and challenges for physiatry in the coming decade.
   Arch Phys Med Rehabil. 1999; 80: 1-12
   View in Article

   • Google Scholar
2. • Starfield B.
   • Shi L.
   The medical home, access to care, and insurance: a review of evidence.
   Pediatrics. 2004; 113: 1493-1498
   View in Article

   • Google Scholar
3. • Alakeson V.
   • Frank R.G.
   • Katz R.E.
   Specialty care medical homes for people with severe, persistent mental disorders.
   Health Aff (Millwood). 2010; 29: 867-873
   View in Article

   • Google Scholar

4. Spina Bifida Association Web site. Available at: http://www.spinabifidaassociation.org/site/c.evKRI7OXIoJ8H/b.8029583/k.C4E9/Clinics.htm. Accessed December 1, 2013.

   View in Article

   • Google Scholar
5. • Brei T.J.
   The future of the multidisciplinary clinic.
   ScientificWorldJournal. 2007; 7: 1752-1756
   View in Article

   • Google Scholar
6. • Dicianno B.E.
   • Kurowski B.G.
   • Yang J.M.J.
   • et al.
   Rehabilitation and medical management of the adult with spina bifida.
   Am J Phys Med Rehabil. 2008; 87: 1027-1050
   View in Article

   • Google Scholar
7. • Walker J.
   • William O.
   Primary care providers and medical homes for individuals with spina bifida.
   J Pediatr Rehabil Med. 2008; 1: 337-344
   View in Article

   • Google Scholar
8. • Webb T.S.
   Medical care of adults with spina bifida.
   J Pediatr Rehabil Med. 2009; 2: 3-11
   View in Article

   • Google Scholar
9. • Webb T.S.
   Optimizing health care for adults with spina bifida.
   Dev Disabil Res Rev. 2010; 16: 76-81
   View in Article

   • Google Scholar
10. • Binks J.A.
    • Barden W.S.
    • Burke T.A.
    • Young N.L.
    What do we really know about the transition to adult-centered health care? A focus on cerebral palsy and spina bifida.
    Arch Phys Med Rehabil. 2007; 88: 1064-1073
    View in Article

    • Google Scholar
11. • Kaufman B.
    • Terbrock A.
    • Winters N.
    • Ito J.
    • Klosterman A.
    • Park T.
    Disbanding a multidisciplinary clinic: effects on the health care of myelomeningocele patients.
    Pediatr Neurosurg. 1994; 21: 36-44
    View in Article

    • Google Scholar
12. • Dicianno B.E.
    • Wilson R.
    Hospitalizations of adults with spina bifida and congenital spinal cord anomalies.
    Arch Phys Med Rehabil. 2010; 91: 529-535
    View in Article

    • Google Scholar
13. • Wilson R.
    • Lewis S.A.
    • Dicianno B.E.
    Targeted preventive care may be needed for adults with congenital spine anomalies.
    PM R. 2011; 3: 730-738
    View in Article

    • Google Scholar
14. • Young N.L.
    • Anselmo L.A.
    • Burke T.A.
    • McCormick A.
    • Mukherjee S.
    Youth and young adults with spina bifida: their utilization of physician and hospital services.
    Arch Phys Med Rehabil. 2014; 95: 466-471
    View in Article

    • Scopus (28)
    • Abstract
    • Full Text
    • Full Text PDF
    • Google Scholar
15. • Klingbeil H.
    • Baer H.R.
    • Wilson P.E.
    Aging with a disability.
    Arch Phys Med Rehabil. 2004; 85 (quiz S74-5): S68-S73
    View in Article

    • Google Scholar
16. • Valtonen K.M.
    • Goksor L.A.
    • Jonsson O.
    • Mellstrom D.
    • Alaranta H.T.
    • Viikari-Juntura E.R.
    Osteoporosis in adults with meningomyelocele: an unrecognized problem at rehabilitation clinics.
    Arch Phys Med Rehabil. 2006; 87: 376-382
    View in Article

    • Google Scholar
17. • Buffart L.M.
    • van den Berg-Emons R.J.
    • Burdorf A.
    • Janssen W.G.
    • Stam H.J.
    • Roebroeck M.E.
    Cardiovascular disease risk factors and the relationships with physical activity, aerobic fitness, and body fat in adolescents and young adults with myelomeningocele.
    Arch Phys Med Rehabil. 2008; 89: 2167-2173
    View in Article

    • Google Scholar
18. • Findley T.W.
    • Agre J.C.
    Ambulation in the adolescent with spina bifida. II. Oxygen cost of mobility.
    Arch Phys Med Rehabil. 1988; 69: 855-861
    View in Article

    • Google Scholar
19. • Verhoef M.
    • Barf H.A.
    • Vroege J.A.
    • et al.
    Sex education, relationships, and sexuality in young adults with spina bifida.
    Arch Phys Med Rehabil. 2005; 86: 979-987
    View in Article

    • Google Scholar
20. • Cardenas D.D.
    • Topolski T.D.
    • White C.J.
    • McLaughlin J.F.
    • Walker W.O.
    Sexual functioning in adolescents and young adults with spina bifida.
    Arch Phys Med Rehabil. 2008; 89: 31-35
    View in Article

    • Google Scholar
21. • King J.C.
    • Currie D.M.
    • Wright E.
    Bowel training in spina bifida: importance of education, patient compliance, age, and anal reflexes.
    Arch Phys Med Rehabil. 1994; 75: 243-247
    View in Article

    • Google Scholar
22. • Rosenbaum P.
    • Stewart D.
    Perspectives on transitions: rethinking services for children and youth with developmental disabilities.
    Arch Phys Med Rehabil. 2007; 88: 1080-1082
    View in Article

    • Google Scholar