Abstract
Objective
To develop a comprehensive community follow-up questionnaire for participants enrolled
in the Rick Hansen Spinal Cord Injury Registry (RHSCIR).
Design
Development and preliminary assessment of measurement properties (reliability and
validity) of instruments used during a community follow-up and aligned with the International Classification of Functioning, Disability and Health (ICF).
Setting
General community setting.
Participants
People with spinal cord injury (N=50) living in the community.
Intervention
Not applicable.
Main Outcome Measures
A comprehensive follow-up questionnaire, referred to as the RHSCIR Community Follow-up
Questionnaire Version 2.0 (CFQ-V2.0), includes 8 instruments. Four new instruments
were developed, 2 existing instruments were modified, and 2 previously published instruments
were included.
Results
Intra- and interrater reliability statistics (Gwet's AC1) support the measurement
properties of the new and modified instruments. Correlations between new and existing
instruments and between groups based on the severity of injury support the construct
validity of the secondary complications and person-perceived participation instruments.
Conclusions
The RHSCIR CFQ-V2.0 is a comprehensive community follow-up questionnaire that aligns
to the ICF. Initial study results suggest that it covers all relevant aspects of community
living, and the measurement properties are promising.
Keywords
List of abbreviations:
CFQ-V1.0 (Community Follow-up Questionnaire Version 1.0), CFQ-V2.0 (Community Follow-up Questionnaire Version 2.0), CHIEF (Craig Hospital Inventory of Environmental Factors), ICF (International Classification of Functioning, Disability and Health), IPA (Impact on Autonomy and Participation Questionnaire), LiSat-11 (Life Satisfaction-11), PDAQ (Person-Perceived Participation in Daily Activities Questionnaire), PROMIS (Patient Reported Outcome Measurement Information System), QOL (quality of life), RHSCIR (Rick Hansen Spinal Cord Injury Registry), SCI (spinal cord injury), SCI-AQ (Spinal Cord Injury Activity Questionnaire), SCI-EQ Suppl (Spinal Cord Injury Environmental Questionnaire Supplement), SCI-HQ: Comorb (Spinal Cord Injury Health Questionnaire: Comorbidities), SCI-HQ: Compl (Spinal Cord Injury Health Questionnaire: Secondary Complications), SCI-SCS (Spinal Cord Injury Secondary Complications Scale), SWLS (Satisfaction With Life Scale)To read this article in full you will need to make a payment
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Article info
Publication history
Published online: March 25, 2013
Footnotes
Supported by the Rick Hansen Institute.
No commercial party having a direct financial interest in the results of the research supporting this article has or will confer a benefit on the authors or on any organization with which the authors are associated (Noreau, Cobb, Bélanger, Noonan, Leblond).
A commercial party having a direct financial interest in the results of the research supporting this article has conferred or will confer a financial benefit on the author or one or more of the authors. Dvorak was employed from 2010 to 2012 as the Scientific Director of the Rick Hansen Institute, which provided funding for this study.
Identification
Copyright
© 2013 American Congress of Rehabilitation Medicine. Published by Elsevier Inc. All rights reserved.
