Original article| Volume 94, ISSUE 9, P1753-1765, September 2013

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Development and Assessment of a Community Follow-Up Questionnaire for the Rick Hansen Spinal Cord Injury Registry

Published:March 25, 2013DOI:



      To develop a comprehensive community follow-up questionnaire for participants enrolled in the Rick Hansen Spinal Cord Injury Registry (RHSCIR).


      Development and preliminary assessment of measurement properties (reliability and validity) of instruments used during a community follow-up and aligned with the International Classification of Functioning, Disability and Health (ICF).


      General community setting.


      People with spinal cord injury (N=50) living in the community.


      Not applicable.

      Main Outcome Measures

      A comprehensive follow-up questionnaire, referred to as the RHSCIR Community Follow-up Questionnaire Version 2.0 (CFQ-V2.0), includes 8 instruments. Four new instruments were developed, 2 existing instruments were modified, and 2 previously published instruments were included.


      Intra- and interrater reliability statistics (Gwet's AC1) support the measurement properties of the new and modified instruments. Correlations between new and existing instruments and between groups based on the severity of injury support the construct validity of the secondary complications and person-perceived participation instruments.


      The RHSCIR CFQ-V2.0 is a comprehensive community follow-up questionnaire that aligns to the ICF. Initial study results suggest that it covers all relevant aspects of community living, and the measurement properties are promising.


      List of abbreviations:

      CFQ-V1.0 (Community Follow-up Questionnaire Version 1.0), CFQ-V2.0 (Community Follow-up Questionnaire Version 2.0), CHIEF (Craig Hospital Inventory of Environmental Factors), ICF (International Classification of Functioning, Disability and Health), IPA (Impact on Autonomy and Participation Questionnaire), LiSat-11 (Life Satisfaction-11), PDAQ (Person-Perceived Participation in Daily Activities Questionnaire), PROMIS (Patient Reported Outcome Measurement Information System), QOL (quality of life), RHSCIR (Rick Hansen Spinal Cord Injury Registry), SCI (spinal cord injury), SCI-AQ (Spinal Cord Injury Activity Questionnaire), SCI-EQ Suppl (Spinal Cord Injury Environmental Questionnaire Supplement), SCI-HQ: Comorb (Spinal Cord Injury Health Questionnaire: Comorbidities), SCI-HQ: Compl (Spinal Cord Injury Health Questionnaire: Secondary Complications), SCI-SCS (Spinal Cord Injury Secondary Complications Scale), SWLS (Satisfaction With Life Scale)
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