Advertisement

Participation of People With Physical Disabilities: Three-Year Trend and Potential for Improvement

Published:January 10, 2013DOI:https://doi.org/10.1016/j.apmr.2012.12.017

      Abstract

      Objective

      To provide an insight into developments in participation over the period 2008 to 2010 among Dutch people with physical disabilities and into their demands for additional participation.

      Design

      Trend study with additional cross-sectional survey.

      Setting

      Community-dwelling people with physical disabilities.

      Participants

      A sample of 1868 (2008), 1900 (2009), and 2163 (2010) people (≥15y) with mild, moderate, or severe physical disability.

      Interventions

      Not applicable.

      Main Outcome Measures

      Eight indicators of participation within International Classification of Functioning, Disability and Health domains: use of neighborhood facilities, going out of the house, having paid work, performing volunteer services, visiting leisure facilities, performing club activities, meeting friends, and use of public transport.

      Results

      No increase in participation rates was found over the years 2008 to 2010. In 2010, 18% of the people who did not have a paid job wanted to work, especially younger (<40y) people and more highly educated people, 30% wanted to do more activities in their leisure time, and 23% wanted more social contacts. People who did not participate in a specific activity in 2010 were more likely to have a desire for additional participation than were people who already participated. People with severe disability were less likely to want work; however, they did express a wish to increase their social activities.

      Conclusions

      Although no increase in participation was found, this does not imply that participation rates among people with physical disabilities have already reached optimal levels. Respondents' stated wish for additional participation provides potential for improvement. Further research should focus on individual values, participation appraisal, and interaction between individual and environmental characteristics to enhance participation.

      Keywords

      List of abbreviations:

      ICF (International Classification of Functioning, Disability and Health), NPCD (National Panel of people with Chronic illness or Disability)
      To read this article in full you will need to make a payment

      Purchase one-time access:

      Academic & Personal: 24 hour online accessCorporate R&D Professionals: 24 hour online access
      One-time access price info
      • For academic or personal research use, select 'Academic and Personal'
      • For corporate R&D use, select 'Corporate R&D Professionals'

      Subscribe:

      Subscribe to Archives of Physical Medicine and Rehabilitation
      Already a print subscriber? Claim online access
      Already an online subscriber? Sign in
      Institutional Access: Sign in to ScienceDirect

      References

        • World Health Organization
        International Classification of Functioning, Disability and Health.
        World Health Organization, Geneva2001
        • United Nations
        Convention on the rights of persons with disabilities and optional protocol.
        United Nations, New York2006
        • van Santvoort M.M.
        Disability in Europe: policy, social participation and subjective well-being [dissertation].
        University of Groningen, Groningen2009
        • van Campen C.
        • Cardol M.
        When work and satisfaction with life do not go hand in hand: health barriers and personal resources in the participation of people with chronic physical disabilities.
        Soc Sci Med. 2009; 69: 56-60
        • Pope D.
        • Bambra C.
        Has the Disability Discrimination Act closed the employment gap?.
        Disabil Rehabil. 2005; 27: 1261-1266
        • Fallahpour M.
        • Tham K.
        • Joghataei M.T.
        • Jonsson H.
        Perceived participation and autonomy: aspects of functioning and contextual factors predicting participation after stroke.
        J Rehabil Med. 2011; 43: 388-397
        • Larsson Lund M.L.
        • Lexell J.
        Perceived participation in life situations in persons with late effects of polio.
        J Rehabil Med. 2008; 40: 659-664
        • Larsson Lund M.
        • Nordlund A.
        • Nygård L.
        • Lexell J.
        • Bernspång B.
        Perceptions of participation and predictors of perceived problems with participation in persons with spinal cord injury.
        J Rehabil Med. 2005; 37: 3-8
        • Wee J.
        • Lysaght R.
        Factors affecting measures of activities and participation in persons with mobility impairment.
        Disabil Rehabil. 2009; 31: 1633-1642
        • Goodley D.
        Disability studies: an interdisciplinary introduction.
        Sage, London2011
        • World Health Organization and World Bank Group
        World report on disability.
        World Health Organization, Geneva2011
      1. Dutch government. Wet gelijke behandeling op grond van handicap of chronische ziekte. (Law equal treatment on grounds of disability or chronic illness). Available at: http://wetten.overheid.nl/BWBR0014915. Accessed June 29, 2012.

        • Kroneman M.
        • Cardol M.
        • Friele R.
        (De)centralization of social support in six Western European countries.
        Health Policy. 2012; 106: 76-87
        • Magasi S.
        • Hammel J.
        • Heinemann A.
        • Whiteneck G.
        • Bogner J.
        Participation: a comparative analysis of multiple rehabilitation stakeholders' perspectives.
        J Rehabil Med. 2009; 41: 936-944
        • Whiteneck G.
        • Dijkers M.P.
        Difficult to measure constructs: conceptual and methodological issues concerning participation and environmental factors.
        Arch Phys Med Rehabil. 2009; 90: S22-S35
        • Rijken M.
        • van Kerkhof M.
        • Dekker J.
        • Schellevis F.G.
        Comorbidity of chronic disease: effects of disease pairs on physical and mental functioning.
        Qual Life Res. 2005; 14: 45-55
      2. The Netherlands Institute for Social Research. Permanent onderzoek naar de leefsituatie (POLS). (Continued research on living conditions). Available at: http://www.scp.nl/Onderzoek/Bronnen/Beknopte_onderzoeksbeschrijvingen/Permanent_onderzoek_naar_de_leefsituatie_POLS. Accessed June 29, 2012.

      3. The Netherlands Institute for Social Research. Aanvullend voorzieningengebruikonderzoek (AVO). (Research on the use of supplementary facilities). Available at: http://www.scp.nl/Onderzoek/Bronnen/Beknopte_onderzoeksbeschrijvingen/Aanvullend_voorzieningengebruikonderzoek_AVO. Accessed June 29, 2012.

        • de Klerk M.
        • Iedema J.
        • van Campen C.
        SCP-maat voor lichamelijke beperkingen op basis van AVO 2003 [Measure of physical disability on the basis of AVO 2003].
        The Netherlands Institute for Social Research, The Hague2006
      4. de Klerk M. Meedoen met beperkingen: Rapportage gehandicapten 2007. (Joining in with limitations: reporting disability 2007). The Netherlands Institute for Social Research, The Hague2007
        • Meulenkamp T.
        • van der Hoek L.
        • Cardol M.
        Deelname aan de samenleving van mensen met een beperking en ouderen: Rapportage participatiemonitor 2011. [Social participation of people with disabilities and the elderly: reporting participation monitor 2011].
        Utrecht: NIVEL. 2011;
      5. de Klerk M. Gilsing R. Timmermans J. Op weg met de Wmo. Evaluatie van de Wet maatschappelijke ondersteuning 2007-2009 [Evaluation of the Social Support Act 2007-2009]. The Netherlands Institute for Social Research, The Hague2010
        • Noreau L.
        • Boschen K.
        Intersection of participation and environmental factors: a complex interactive process.
        Arch Phys Med Rehabil. 2010; 91: S44-S53
        • Mallinson T.
        • Hammel J.
        Measurement of participation: intersecting person, task, and environment.
        Arch Phys Med Rehabil. 2010; 91: S29-S33
        • Escorpizo R.
        • Graf S.
        • Marti A.
        • et al.
        Domain sets and measurement instruments on participation and environmental factors in spinal cord injury research.
        Am J Phys Med Rehabil. 2011; 90: S66-S78
        • Law M.
        • Baptiste S.
        • Mills J.
        Client-centred practice: what does it mean and does it make a difference?.
        Can J Occup Ther. 1995; 62: 250-257