Abstract
Objective
To identify and critique the measures currently used to assess participation in clinical
stroke studies.
Data Sources
Relevant articles published between January 2001 and April 2012 identified through
Medline, CINAHL, and ProQuest Central databases.
Study Selection
Published articles involving poststroke assessment of participation. Case studies,
cohort studies, and randomized controlled trials were included.
Data Extraction
The most frequently used measures were identified and the psychometric properties
evaluated. Three raters independently evaluated each measure relative to the first
and second coding levels of the International Classification of Functioning, Disability and Health (ICF) Activities and Participation domain categories.
Data Synthesis
Thirty-six measures were identified. The Stroke Impact Scale (SIS), London Handicap
Scale, Assessment of Life Habits (LIFE-H), Frenchay Activities Index, and Activity
Card Sort (ACS) were used most frequently. No single measure met criteria across all
psychometric indices, and not one covered all 9 of the ICF Activities and Participation
domains. The SIS, LIFE-H, and ACS covered the widest range. The domains covered most
frequently were Community, Social and Civic Life, Domestic Life, and Mobility. Learning
and Applying Knowledge, General Tasks and Demands, and Communication were the domains
less frequently covered.
Conclusions
This review identified and evaluated the most frequently used participation measures
in clinical stroke studies. The SIS, LIFE-H, and ACS covered the ICF Activities and
Participation domain categories most comprehensively. However, none of the measures
covered all the ICF Activities and Participation domain categories. The information
provided in this systematic review can be used to guide the selection of participation
measures to meet specific clinical and research purposes.
Keywords
List of abbreviations:
ACS (Activity Card Sort), ACS-Aus (Activity Card Sort Australian version), ACS-HK (Activity Card Sort Hong Kong version), ACS-Israeli (Activity Card Sort Israeli version), ADL (activities of daily living), BI (Barthel Index), FAI (Frenchay Activities Index), IADL (instrumental activities of daily living), ICC (intraclass correlation coefficient), ICF (International Classification of Functioning, Disability and Health), ICIDH (International Classification of Impairments, Disabilities and Handicaps), LHS (London Handicap Scale), LIFE-H (Assessment of Life Habits), NEADL (Nottingham Extended Activities of Daily Living scale), SIS (Stroke Impact Scale), SMAF (Functional Autonomy Measurement System)To read this article in full you will need to make a payment
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Article info
Publication history
Published online: September 13, 2012
Footnotes
Supported by a La Trobe University Postgraduate Research Scholarship, a Florey Institute of Neuroscience and Mental Health Top-up Scholarship, and a Stroke Society of Australasia Scientific Award; and by an Australian Research Council Future Fellowship (FT0992299) and the Victorian Government’s Operational Infrastructure Support Program. The funding sources had no role in conduct of the study or writing of the report.
No commercial party having a direct financial interest in the results of the research supporting this article has or will confer a benefit on the authors or on any organization with which the authors are associated.
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© 2013 American Congress of Rehabilitation Medicine. Published by Elsevier Inc. All rights reserved.
