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Original article| Volume 93, ISSUE 3, P381-385.e9, March 2012

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Quality of Care Indicators for the Rehabilitation of Children With Traumatic Brain Injury

  • Frederick P. Rivara
    Correspondence
    Correspondence to Frederick P. Rivara, MD, MPH, Harborview Injury Prevention and Research Center, Box 359960, 325 Ninth Ave, Seattle, WA 98104
    Affiliations
    Harborview Injury Prevention and Research Center, University of Washington, Seattle, WA

    Department of Pediatrics, University of Washington, Seattle, WA

    Center for Child Health, Behavior and Development, Seattle Children's Research Institute, Seattle, WA
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  • Stephanie K. Ennis
    Affiliations
    Harborview Injury Prevention and Research Center, University of Washington, Seattle, WA

    Department of Rehabilitation Medicine, University of Washington, Seattle, WA
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  • Rita Mangione-Smith
    Affiliations
    Department of Pediatrics, University of Washington, Seattle, WA

    Center for Child Health, Behavior and Development, Seattle Children's Research Institute, Seattle, WA
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  • Ellen J. MacKenzie
    Affiliations
    Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD

    Center for Injury Research and Policy, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD
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  • Kenneth M. Jaffe
    Affiliations
    Harborview Injury Prevention and Research Center, University of Washington, Seattle, WA

    Department of Rehabilitation Medicine, University of Washington, Seattle, WA
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  • National Expert Panel for the Development of Pediatric Rehabilitation Quality Care Indicators
Published:January 27, 2012DOI:https://doi.org/10.1016/j.apmr.2011.08.015

      Abstract

      Rivara FP, Ennis SK, Mangione-Smith R, MacKenzie EJ, Jaffe KM, and the National Expert Panel for the Development of Pediatric Rehabilitation Quality Care Indicators. Quality of care indicators for the rehabilitation of children with traumatic brain injury.

      Objective

      To develop measurement tools for assessing compliance with identifiable processes of inpatient care for children with traumatic brain injury (TBI) that are reliable, valid, and amenable to implementation.

      Design

      Literature review and expert panel using the RAND/UCLA Appropriateness Method and a Delphi technique.

      Setting

      Not applicable.

      Participants

      Children with TBI.

      Interventions

      Not applicable.

      Main Outcome Measure

      Quality of care indicators.

      Results

      A total of 119 indicators were developed across the domains of general management; family-centered care; cognitive-communication, speech, language, and swallowing impairments; gross and fine motor skill impairments; neuropsychologic, social, and behavioral impairments; school reentry; and community integration. There was a high degree of agreement on these indicators as valid and feasible quality measures for children with TBI.

      Conclusions

      These indicators are an important step toward building a better base of evidence about the effectiveness and efficiency of the components of acute inpatient rehabilitation for pediatric patients with TBI.

      Key Words

      List of Abbreviations:

      ADLs (activities of daily living), CARF (Commission on Accreditation of Rehabilitation Facilities), RAM (RAND/UCLA Appropriateness Method), TBI (traumatic brain injury)
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