Abstract
Thurmond VA, Hicks R, Gleason T, Miller AC, Szuflita N, Orman J, Schwab K. Advancing
integrated research in psychological health and traumatic brain injury: common data
elements.
In civilian, military, and veteran populations, there is increased recognition of
the interrelationship between traumatic brain injury (TBI) and some psychological
health (PH) disorders and the need to better understand the relationships by integrating
research for these topics. The use of different measures to assess similar study variables
and/or assess outcomes may limit important advances in PH and TBI research. Without
a set of common data elements (CDEs; to include variable definitions and recommended
measures for the purpose of this discussion), comparison of findings across studies
is challenging. The federal agencies involved in PH and TBI research, the National
Institute of Neurological Disorders and Stroke, Department of Veterans Affairs, National
Institute on Disability and Rehabilitation Research, Defense Centers of Excellence
for Psychological Health and Traumatic Brain Injury, and Defense and Veterans Brain
Injury Center, therefore cosponsored a scientific initiative to develop CDEs for PH
and TBI research. Scientific experts were invited to participate in 1 of 8 working
groups to develop recommendations for specific topic-driven CDEs. Draft recommendations
were presented and discussed in the workshop “Advancing Integrated Research in Psychological
Health and Traumatic Brain Injury: Common Data Elements (CDE)” held on March 23–24,
2009, in Silver Spring, MD. The overall process leading to the workshop and subsequent
recommendations by the working groups are presented in this article. Topic-driven
recommendations for CDEs are presented in individual reports in this edition.
Key Words
List of Abbreviations:
CDC (Centers for Disease Control and Prevention), CDE (common data element), DCoE (Defense Centers of Excellence for Psychological Health and Traumatic Brain Injury), DoD (Department of Defense), DVBIC (Defense and Veterans Brain Injury Center), NIDRR (National Institute on Disability and Rehabilitation Research), NIH (National Institutes of Health), NINDS (National Institute of Neurological Disorders and Stroke), OEF (Operation Enduring Freedom), OIF (Operation Iraqi Freedom), PH (psychological health), PTSD (posttraumatic stress disorder), TBI (traumatic brain injury), TBIMS (Traumatic Brain Injury Model Systems), VA (Department of Veterans Affairs)To read this article in full you will need to make a payment
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References
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Article info
Footnotes
Views expressed are those of the authors and do not necessarily reflect those of the agencies or institutions with which they are affiliated, including the U.S. Department of Defense, the U.S. Department of Veterans Affairs, the U.S. Department of Health and Human Services, or the U.S. Department of Education. This work is not an official document, guidance, or policy of the U.S. Government, nor should any official endorsement be inferred.
No commercial party having a direct financial interest in the results of the research supporting this article has or will confer a benefit on the authors or on any organization with which the authors are associated.
Reprints are not available from the author.
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Published by Elsevier Inc.
