The article by Gagnon et al
1
in the July 2008 issue nicely identified personal and environmental factors that
may influence the trajectory toward disrupted participation in individuals with myotonic
muscular dystrophy type 1 (DM1). The factors they identified that were found to be
independent predictors of disrupted participation included fatigue, strength, and
family support. Unfortunately, this study did not address an additional issue that
many individuals with DM1 must deal with: chronic pain. Pain as a cause of impaired
community and social integration, as well as diminished quality of life is frequently
overlooked, despite clearly being identified as a major problem for this patient population.
2
We raise this point primarily to make readers more aware of a problem that seems
to be continually overlooked. Indeed many major medical textbooks still describe this
disorder, as well as other neuromuscular diseases, as being “painless,” which is clearly
not the case. We congratulate the authors on an otherwise excellent study.To read this article in full you will need to make a payment
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References
- Predictors of disrupted social participation in myotonic dystrophy type 1.Arch Phys Med Rehabil. 2008; 89: 1246-1255
- Chronic pain in persons with myotonic and facioscapulohumeral muscular dystrophy.Arch Phys Med Rehabil. 2008; 89: 320-328
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Copyright
© 2008 American Congress of Rehabilitation Medicine and the American Academy of Physical Medicine and Rehabilitation. Published by Elsevier Inc. All rights reserved.
