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Developing, Testing, and Sustaining Rehabilitation Interventions Via Participatory Action Research

      Abstract

      Few published intervention studies in the rehabilitation literature have included consumers in the research process other than as study participants. This lack of consumer involvement in intervention research may contribute to the challenges encountered developing, translating, disseminating, and sustaining evidence-based rehabilitation interventions in clinical practice. The overall objective of this article is to promote the integration of participatory action research (PAR) into rehabilitation intervention research as a mechanism for addressing these gaps. First, we outline essential components of a PAR model across 5 key phases of intervention research, specifically: agenda setting, methods, implementation, diffusion/dissemination, and sustainability. Second, we describe the use of PAR in rehabilitation intervention research within each of these phases by reviewing relevant literature and by providing an illustrative research example from a randomized controlled trial that integrated PAR throughout the research process. Finally, we conclude with a discussion of 5 specific recommendations for promoting the integration of PAR into rehabilitation intervention research.

      Keywords

      List of abbreviations:

      ACA (Amputee Coalition of America), AHRQ (Agency for Healthcare Research and Quality), CBPR (community-based participatory research), JHU (Johns Hopkins University), PALS (Promoting Amputee Life Skills), PAR (participatory action research), RCT (randomized controlled trial)
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