Abstract
Objective
To examine the system of connections among traumatic brain injury (TBI) patient social
functioning, family functioning, and caregiver depression and burden in Mexico.
Design
Cross-sectional survey.
Setting
A public medical facility.
Participants
Mexican TBI patient-caregiver dyads (N=84) participated in this study. Most of the
patients with TBI were men (81%), with an average age ± SD of 38.83±13.44 years. The
majority of caregivers (86%) were women, with an average age ± SD of 51.74±11.29.
Intervention
Not applicable.
Main Outcome Measures
Outcomes assessed included family functioning (Family Satisfaction Scale), patient
social functioning (Medical Outcomes Study 36-Item Short-Form Health Survey), and
caregiver mental health (Patient Health Questionnaire-9 and Zarit Burden Interview).
Results
A moderated mediation path model found that patient social functioning and family
functioning predicted caregiver burden, and caregiver burden mediated the effect of
family functioning on caregiver depression. Caregivers with strong family functioning
tended to have low burden, no matter the level of patient social functioning. This
path model provided an excellent fit and explained 47% of the variance in caregiver
burden and 36% of the variance in caregiver depression.
Conclusions
In Mexico, strong family functioning is an important buffer in the relationship between
TBI patient social functioning deficits and caregiver mental health, especially because
familism is a core value in Latino culture. Rehabilitation interventions designed
to strengthen family functioning may improve caregiver mental health, thereby influencing
the quality of informal care that caregivers are able to provide.
Keywords
List of abbreviations:
CFI (comparative fit analysis), FSS (Family Satisfaction Scale), IQR (interquartile range), RMSEA (root mean square error of approximation), SF-36 (Medical Outcomes Study 36-Item Short-Form Health Survey), TBI (traumatic brain injury), ZBI (Zarit Burden Interview)To read this article in full you will need to make a payment
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References
- Distress, depressive symptoms, and depressive disorder among caregivers of patients with brain injury.J Head Trauma Rehab. 1998; 13: 31-43
- Patient correlates of caregivers’ distress and family functioning after traumatic brain injury.Brain Inj. 1994; 8: 211-230
- Primary caregivers’ psychological status and family functioning after traumatic brain injury.Brain Inj. 1994; 8: 197-210
- Affective symptoms in the chronic phase of traumatic brain injury: a study of married couples.Brain Inj. 1994; 8: 135-147
- Long-term adjustment of families following traumatic brain injury where comprehensive rehabilitation has been provided.Brain Inj. 2003; 17: 453-468
- Predictors of family caregivers’ life satisfaction after traumatic brain injury at one and two years post-injury: a longitudinal multi-center investigation.NeuroRehabilitation. 2010; 27: 73-81
- Brain injury - the perceived health of carers.Disabil Rehabil. 2000; 22: 683-689
- A study of the health and social needs of carers of traumatically brain injured individuals served by one community rehabilitation team.Brain Inj. 1999; 13: 983-993
- Caregiver burden during the year following severe traumatic brain injury.J Clin Exp Neuropsyc. 2001; 24: 434-447
- Predicting family functioning after TBI: impact of neurobehavioral factors.J Head Trauma Rehab. 2006; 21: 236-247
- Effects of family and caregiver psychosocial functioning on outcomes in persons with traumatic brain injury.J Head Trauma Rehab. 2011; 26: 20-29
- A contemporary model of stress for understanding family functioning and the psychological distress in relatives of people with severe traumatic brain injury (TBI).in: Johns D. Stress and its impact on society. Nova Science, New York2006: 23-56
- Predictors of family system functioning after brain injury.Brain Inj. 2006; 20: 587-600
- The relationship between neurobehavioural problems of severe traumatic brain injury (TBI), family functioning and the psychological wellbeing of the spouse/caregiver: path model analysis.Brain Inj. 2002; 16: 743-757
- Family conflict as a mediator of caregiver strain.Fam Relat. 2006; 55: 625-635
- Family adaptation to brain injury: coping and psychological distress.Fam Syst Health. 2005; 23: 186-203
- Predictors of caregiver and family functioning following traumatic brain injury: social support moderates caregiver distress.J Head Trauma Rehab. 2002; 17: 155-174
- Parental stress and marital relationships among patients with brain injury and their spouses.NeuroRehabilitation. 2011; 28: 321-330
- Early indicators and contributors to psychological distress in relatives during rehabilitation following severe traumatic brain injury: findings from the brain injury outcomes study.J Head Trauma Rehab. 2006; 21: 453-466
- Family functioning and emotional state two and five years after traumatic brain injury.J Int Neuropsych Soc. 2010; 16: 306-317
- Puerto-Rican sons as primary caregivers of elderly parents.Soc Work. 1997; 42: 125-134
- Middle-aged Puerto-Rican women as primary caregivers to the elderly: a qualitative analysis of everyday dynamics.in: Delgado M. Latino elders and the twenty-first century: issues and challenges for culturally competent research and practice. Haworth, New York1998: 75-98
- Factorial invariance of a pan-Hispanic familism scale.Hispanic J Behav Sci. 2005; 27: 409-425
- Latino culture values: their role in adjustment to disability.J Soc Behav. 1994; 9: 1-16
- Eldercare and the changing family in Puerto Rico.J Fam Issues. 2000; 21: 652-674
- Family needs in caregivers of individuals with traumatic brain injury from Colombia, South America.Brain Inj. 2010; 24: 1017-1026
- Relationship of race/ethnicity to caregivers’ coping, appraisals, and distress after traumatic brain injury.NeuroRehabilitation. 2007; 22: 9-17
- Quality of life in patients 2 to 4 years after closed head injury.Neurosurgery. 1986; 19: 735-743
- Psychosocial and emotional sequelae of individuals with traumatic brain injury: a literature review and recommendations.Brain Inj. 1995; 9: 81-92
- Stability of functional outcomes following transitional living programme participation: 3-year follow-up.Brain Inj. 1994; 8: 439-447
- Psychosocial issues following severe head injury in adolescence: individual and family perspectives.Rehabil Counsel Bull. 1991; 35: 5-22
- Caregiver burden at 6 months following severe traumatic brain injury.Brain Inj. 1998; 12: 225-238
- Caregiver burden at 1 year following severe traumatic brain injury.Brain Inj. 1998; 12: 1045-1059
- Examining the contribution of social communication abilities and affective/behavioral functioning to social integration outcomes for adults with traumatic brain injury.J Head Trauma Rehab. 2011; 26: 30-42
- Comprehension of indirect requests by adults with severe traumatic brain injury: contributions of gestural and verbal information.Brain Inj. 2011; 25: 767-776
- Early indicators and contributors to psychological distress in relatives during rehabilitation following severe traumatic brain injury: findings from the brain injury outcomes study.J Head Trauma Rehab. 2006; 21: 453-466
- Assessment of coma and impaired consciousness: a practical scale.Lancet. 1974; 304: 81-84
- The PHQ-9: validity of a brief depression severity measure.J Gen Intern Med. 2001; 16: 606-613
- The feasibility of using the Spanish PHQ-9 to screen for depression in primary care in Honduras.Prim Care Companion J Clin Psychiat. 2002; 4: 191-195
- Validation and utility of the Patient Health Questionnaire in diagnosing mental disorders in 1003 general hospital Spanish inpatients.Psychosom Med. 2001; 63: 679-686
- Screening for depression among indigenous Mexican migrant farmworkers using the Patient Health Questionnaire-9.Psychol Rep. 2010; 106: 419-432
- Relatives of the impaired elderly: correlates of feelings of burden.Gerontologist. 1980; 20: 649-655
- Adaptación para nuestro medio de la Escala de Sobrecarga del Cuidador (Caregiver Burden Interview) de Zarit.Revista de Gerontología. 1996; 6: 338-446
- FACES IV manual.Life Innovations, Minneapolis2010
- Evaluación del funcionamiento familiar en toxicomanías: adaptación española y características de adecuación métrica del FAP-FACES IV.in: Iraurgi I. González-Saiz F. Instrumentos de evaluación en drogodependencias. Aula Médica, Madrid2002: 403-434
- SF-36 Health Survey: manual and interpretation guide.QualityMetric Inc, Lincoln1993
- The reliability and validity of the SF-36 health survey questionnaire for use with individuals with traumatic brain injury.Brain Inj. 2001; 15: 715-723
- Measuring health status in psychiatric community surveys: internal and external validity of the Spanish version of the SF-36.Acta Psychiatr Scand. 1999; 99: 26-32
- Validating the SF-36 health survey questionnaire: new outcome measure for primary care.British Med J. 1992; 305: 160-164
- Health-related quality of life in caregivers of individuals with traumatic brain injury from Guadalajara, Mexico.J Rehabil Med. 2011; 43: 983-986
- Research with Hispanic populations.Sage, Newbury Park1991
- Issues of race, ethnicity, and culture in caregiving research: a 20-year review.Gerontologist. 2002; 42: 237-272
- Patterns of informal care among Puerto-Rican, African American, and white stroke survivors.Ethnic Health. 2009; 14: 591-606
Article info
Publication history
Published online: September 03, 2012
Footnotes
No commercial party having a direct financial interest in the results of the research supporting this article has or will confer a benefit on the authors or on any organization with which the authors are associated.
Identification
Copyright
© 2013 American Congress of Rehabilitation Medicine. Published by Elsevier Inc. All rights reserved.