Archives of Physical Medicine and Rehabilitation
Volume 90, Issue 3 , Pages 373-380 , March 2009

Self-Management Improves Outcomes in Persons With Limb Loss

  • Stephen T. Wegener, PhD, ABPP

      Affiliations

    • Department of Physical Medicine & Rehabilitation, School of Medicine, Johns Hopkins University, Baltimore, MD
    • Health Policy and Management, Bloomberg School of Public Health, Johns Hopkins University, Baltimore, MD
    • Corresponding Author InformationCorrespondence to Stephen T. Wegener, PhD, ABPP, Johns Hopkins University, Dept of Physical Medicine and Rehabilitation, 600 N Wolfe St, Phipps, Room 174, Baltimore, MD 21287
    • ,
  • Ellen J. Mackenzie, PhD

      Affiliations

    • Department of Physical Medicine & Rehabilitation, School of Medicine, Johns Hopkins University, Baltimore, MD
    • Health Policy and Management, Bloomberg School of Public Health, Johns Hopkins University, Baltimore, MD
    • ,
  • Patti Ephraim, MPH

      Affiliations

    • Health Policy and Management, Bloomberg School of Public Health, Johns Hopkins University, Baltimore, MD
    • ,
  • Dawn Ehde, PhD

      Affiliations

    • Department of Rehabilitation Medicine, School of Medicine, University of Washington, Seattle, WA
    • ,
  • Rhonda Williams, PhD

      Affiliations

    • Department of Rehabilitation Medicine, School of Medicine, University of Washington, Seattle, WA

References 

  1. Adams P, Hendershot G, Marano M. Current estimates from the National Health Interview Survey, 1996 (Centers for Disease Control and Prevention/National Center for Health Statistics). Vital Health Stat. 1999;200:1–203
  2. Ziegler-Graham K, MacKenzie EJ, Ephraim PL, Travison TG, Brookmeyer R. Estimating the prevalence of limb loss in the United States: 2005-2050. Arch Phys Med Rehabil. 2008;89:422–429
  3. Ephraim PL, MacKenzie EJ, Wegener ST, Dillingham TR, Pezzin LE. Environmental barriers experienced by amputees: the Craig Hospital Inventory of Environmental Factors-Short Form. Arch Phys Med Rehabil. 2006;87:328–333
  4. Ephraim PL, Wegener ST, MacKenzie EJ, Dillingham TR, Pezzin LE. Phantom pain, residual limb pain, and back pain in amputees: results of a national survey. Arch Phys Med Rehabil. 2005;86:1910–1919
  5. Darnall BD, Ephraim P, Wegener ST, et al. Depressive symptoms and mental health service utilization among persons with limb loss: results of a national survey. Arch Phys Med Rehabil. 2005;86:650–658
  6. Ehde DM, Czerniecki JM, Smith DG, et al. Chronic phantom sensations, phantom pain, residual limb pain, and other regional pain after lower limb amputation. Arch Phys Med Rehabil. 2000;81:1039–1044Aug
  7. Smith DG, Ehde DM, Legro MW, Reiber GE, del Aguila M, Boone DA. Phantom limb, residual limb, and back pain after lower extremity amputations. Clin Orthop Relat Res. 1999;29–38Apr(361)
  8. Kashani JH, Frank RG, Kashani SR, Wonderlich SA, Reid JC. Depression among amputees. J Clin Psychiatry. 1983;44:256–258
  9. Cansever A, Uzun O, Yildiz C, Ates A, Atesalp AS. Depression in men with traumatic lower part amputation: a comparison to men with surgical lower part amputation. Mil Med. 2003;168:106–109
  10. Ehde D, Smith D, Czerniecki J, Campbell K, Malchow D. Back pain as a secondary disability in persons with lower limb amptuations. Arch Phys Med Rehabil. 2001;82:731–734
  11. Williamson G, Schulz R, Bridges M, Behan A. Social and psychological factors in adjustment to limb amputation. J Soc Behav Pers. 1994;9:249–268
  12. Bosse M, MacKenzie E, Kellam J, et al. An analysis of outcomes of reconstruction or amputation after leg-threatening injuries. N Engl J Med. 2003;347:1924–1931
  13. Wilson IB, Cleary PD. Linking clinical variables with health-related quality of life (A conceptual model of patient outcomes). JAMA. 1995;273:59–65
  14. Lorig KR, Sobel DS, Stewart AL, et al. Evidence suggesting that a chronic disease self-management program can improve health status while reducing hospitalization: a randomized trial. Med Care. 1999;37:5–14
  15. Sandstrom MJ, Keefe FJ. Self-management of fibromyalgia: the role of formal coping skills training and physical exercise training programs. Arthritis Care Res. 1998;11:432–447
  16. Norris SL, Engelgau MM, Narayan KM. Effectiveness of self-management training in type 2 diabetes: a systematic review of randomized controlled trials. Diabetes Care. 2001;24:561–587
  17. Chodosh J, Morton SC, Mojica W, et al. Meta-analysis: chronic disease self-management programs for older adults. Ann Intern Med. 2005;143:427–438
  18. Lorig K, Holman H. Arthritis self-management studies: a twelve-year review. Health Educ Q. 1993;20:17–28
  19. Lorig K, Seleznick M, Lubeck D, Ung E, Chastain RL, Holman HR. The beneficial outcomes of the arthritis self-management course are not adequately explained by behavior change. Arthritis Rheum. 1989;32:91–95
  20. Horgan O, MacLachlan M. Psychosocial adjustment to lower-limb amputation: a review. Disabil Rehabil. 2004;26:837–850
  21. Bright JI, Baker KD, Neimeyer RA. Professional and paraprofessional group treatments for depression: a comparison of cognitive-behavioral and mutual support interventions. J Consult Clin Psychol. 1999;67:491–501
  22. Brodaty H, Green A, Koschera A. Meta-analysis of psychosocial interventions for caregivers of people with dementia. J Am Geriatr Soc. 2003;51:657–664
  23. van Dam HA, van der Horst FG, Knoops L, Ryckman RM, Crebolder HF, van den Borne BH. Social support in diabetes: a systematic review of controlled intervention studies. Patient Educ Couns. 2005;59:1–12
  24. Rehse B, Pukrop R. Effects of psychosocial interventions on quality of life in adult cancer patients: meta analysis of 37 published controlled outcome studies. Patient Educ Couns. 2003;50:179–186
  25. Davison KP, Pennebaker JW, Dickerson SS. Who talks? (The social psychology of illness support groups). Am Psychol. 2000;55:205–217
  26. Lorig KR, Holman H. Self-management education: history, definition, outcomes, and mechanisms. Ann Behav Med. 2003;26:1–7
  27. Cleeland CS, Ryan KM. Pain assessment: global use of the Brief Pain Inventory. Ann Acad Med Singapore. 1994;23:129–138
  28. Radloff L. The CES-D Scale: a self-report depression scale for research in the general population. Applied Psychological Measurement. 1977;1:385–401
  29. Watson D, Clark LA, Tellegen A. Development and validation of brief measures of positive and negative affect: the PANAS scales. J Pers Soc Psychol. 1988;54:1063–1070
  30. Adler NE, Horowitz M, Garcia A, Moyer A. Additional validation of a scale to assess positive states of mind. Psychosom Med. 1998;60:26–32
  31. Horowitz M, Adler N, Kegeles S. A scale for measuring the occurrence of positive states of mind: a preliminary report. Psychosom Med. 1988;50:477–483
  32. Swiontkowski MF, Engelberg R, Martin DP, Agel J. Short musculoskeletal function assessment questionnaire: validity, reliability, and responsiveness. J Bone Joint Surg Am. 1999;81:1245–1260
  33. Engelberg R, Martin D, Agel J, Obremsky W, Coronado G, Swiontkowski M. Musculoskeletal Function Assessment instrument: criterion and construct validity. J Orthop Res. 1996;14:182–192
  34. Diener E, Emmons RA, Larsen RJ, Griffin S. The Satisfaction with Life Scale. J Pers Assess. 1985;49:71–75
  35. Charlson M, Pompei P, Ales K, MacKenzie C. A new method of classifying prognostic comorbidity in longitudinal studies: development and validation. J Chronic Dis. 1987;40:373–383
  36. Lorig KR, Sobel DS, Ritter PL, Laurent D, Hobbs M. Effect of a self-management program on patients with chronic disease. Eff Clin Pract. 2001;4:256–262
  37. America CoQoHCi. Crossing the Quality Chasm: A New Health System for the 21st Century. Washington, DC: Institute of Medicine; 2001;
  38. Smith NM, Floyd MR, Scogin F, Jamison CS. Three-year follow-up of bibliotherapy for depression. J Consult Clin Psychol. 1997;65:324–327
  39. Kohlenberg RJ, Cahn T. Self-help treatment for migraine headaches: a controlled outcome study. Headache. 1981;21:196–200
  40. Taal E, Riemsma RP, Brus HL, Seydel ER, Rasker JJ, Wiegman O. Group education for patients with rheumatoid arthritis. Patient Educ Couns. 1993;20:177–187
  41. Lorig KR, Mazonson PD, Holman HR. Evidence suggesting that health education for self-management in patients with chronic arthritis has sustained health benefits while reducing health care costs. Arthritis Rheum. 1993;36:439–446
  42. Linton SJ. A cognitive-behavioral approach to the prevention of chronic back pain. In:  Turk DC,  Gatchel RJ editor. Psychological approaches to pain management: a practitioner's handbook. New York: Guilford Press; 2002;p. 317–333
  43. Ferrari R. Prevention of chronic pain after whiplash. Emerg Med J. 2002;19:526–530
  44. Rybarczyk BD, Nyenhuis DL, Nicholas JJ, Schulz R, Alioto RJ, Blair C. Social discomfort and depression in a sample of adults with leg amputations. Arch Phys Med Rehabil. 1992;73:1169–1173
  45. Frank RG, Kashani JH, Kashani SR, Wonderlich SA, Umlauf RL, Ashkanazi GS. Psychological response to amputation as a function of age and time since amputation. Br J Psychiatry. 1984;144:493–497
  46. Rubak S, Sandbaek A, Lauritzen T, Christensen B. Motivational interviewing: a systematic review and meta-analysis. Br J Gen Pract. 2005;55:305–312
  47. Leis AM, Haines CS, Pancyr GC. Exploring oncologists' beliefs about psychosocial groups: implications for patient care and research. J Psychosoc Oncol. 1994;12:77–87
  48. Services USDoHaH. Healthy People 2010: understanding and improving health. 2nd ed.. Washington, D.C.: U.S. Government Printing Office; 2000;
  49. Linton SJ. Early identification and intervention in the prevention of musculoskeletal pain. Am J Ind Med. 2002;41:433–442

 Supported by the Centers for Disease Control and Prevention (grant no. R04/CCU322981).

 No commercial party having a direct financial interest in the results of the research supporting this article has or will confer a benefit on the authors or on any organization with which the authors are associated.

PII: S0003-9993(08)01700-0

doi: 10.1016/j.apmr.2008.08.222

Archives of Physical Medicine and Rehabilitation
Volume 90, Issue 3 , Pages 373-380 , March 2009

Article Tools

* Image Usage & Resolution