Archives of Physical Medicine and Rehabilitation
Volume 90, Issue 1 , Pages 27-33 , January 2009

The Impact of Adaptive Seating Devices on the Lives of Young Children With Cerebral Palsy and Their Families

Presented to the International Seating Symposium, March 9, 2007, Orlando, FL.

  • Stephen E. Ryan, MSc, PEng

      Affiliations

    • Bloorview Research Institute, Bloorview Kids Rehab, Toronto, ON, Canada
    • Departments of Occupational Science and Occupational Therapy, University of Toronto, Toronto, ON, Canada
    • Corresponding Author InformationCorrespondence to Stephen E. Ryan, MSc, PEng, Bloorview Research Institute, Bloorview Kids Rehab, 150 Kilgour Rd, Toronto, ON, Canada, M4G 1R8
    • ,
  • Kent A. Campbell, PhD

      Affiliations

    • Departments of Occupational Science and Occupational Therapy, University of Toronto, Toronto, ON, Canada
    • Public Health Sciences, University of Toronto, Toronto, ON, Canada
    • Graduate Department of Rehabilitation Sciences, University of Toronto, Toronto, ON, Canada
    • ,
  • Patricia J. Rigby, MHSc, OTReg(Ont)

      Affiliations

    • Bloorview Research Institute, Bloorview Kids Rehab, Toronto, ON, Canada
    • Departments of Occupational Science and Occupational Therapy, University of Toronto, Toronto, ON, Canada
    • ,
  • Barbara Fishbein-Germon, MSW, RSW
    • ,
  • Darlene Hubley, BSc, OTReg(Ont)

      Affiliations

    • Bloorview Research Institute, Bloorview Kids Rehab, Toronto, ON, Canada
    • ,
  • Betty Chan, MSc, OTReg(Ont)

      Affiliations

    • Bloorview Research Institute, Bloorview Kids Rehab, Toronto, ON, Canada

References 

  1. U.S. Department of Education. Individuals with Disabilities Education Act 2004. Sec. 602 (1) (A). http://idea.ed.gov/explore/view/p/%2Croot%2Cstatute%2CI%2CA%2C602%2CAccessed October 17, 2008
  2. Ostensjo S, Carlberg EB, Vollestad NK. The use and impact of assistive devices and other environmental modifications on everyday activities and care in young children with cerebral palsy. Disab Rehab. 2005;27:849–861
  3. Korpela R, Seppanen RL, Koivikko M. Technical aids for daily activities: a regional survey of 204 disabled children. Dev Med Child Neur. 1992;11:985–998
  4. Riemer-Reiss ML, Wacker RR. Factors associated with assistive technology discontinuance among individuals with disabilities. J Rehab. 2000;66:44-50
  5. Scherer M. Outcomes of assistive technology use on quality of life. Disabil Rehabil. 1996;18:439–448
  6. Phillips B, Zhao H. Predictors of assistive technology abandonment. Assist Technol. 1993;5:36–45
  7. Henderson S, Skelton H, Rosenbaum P. Assistive devices for children with functional impairments: impact on child and caregiver function. Dev Med Child Neur. 2008;52:89–98
  8. Reid D, Rigby P, Ryan S. Functional impact of a rigid pelvic stabilizer on children with cerebral palsy who use wheelchairs: users' and caregivers' perceptions. J Pediatr Rehabil. 1999;3:101–118
  9. Rigby P, Reid D, Schoger S, Ryan S. Effects of a wheelchair-mounted rigid pelvic stabilizer on caregiver assistance for children with cerebral palsy. Assist Technol. 2001;13:2–11
  10. Smith-Zuzovsky N, Exner CE. The effect of seated position quality on typical 6- and 7-year-old children's object manipulation skills. Am J Occup Ther. 2004;58:380–388
  11. Hulme JB, Gallacher K, Walsh J, Niesen S, Waldron D. Behavioral and postural changes observed with the use of adaptive seating by clients with multiple handicaps. Phys Ther. 1987;67:1060–1067
  12. Stavness C. The effect of positioning for children with cerebral palsy on upper-extremity function: a review of the evidence. Phys Occup Ther Pediatr. 2006;26:39–53
  13. Cook AM, Miller Polgar J. Cook and Hussey's assistive technologies: principles and practice. 3rd ed. St. Louis: Elsevier; 2007;
  14. Palisano RD, Rosenbaum P, Walter S, Russell D, Wood E, Galuppi B. Development and reliability of a system to classify gross motor function in children with cerebral palsy. Dev Med Child Neur. 1997;39:214–223
  15. Ryan SE, Campbell KA, Rigby P, Germon B, Chan B, Hubley D. Development of the new family impact of assistive technology scale. Int J Rehabil Res. 2006;29:195–200
  16. Ryan SE, Campbell KA, Rigby PJ. Reliability of the family impact of assistive technology scale. Arch Phys Med Rehabil. 2007;88:1436–1440
  17. Stein RE, Jessop DJ. The impact on family scale revisited: further psychometric data. J Dev Behav Pediatr. 2003;24:9–16
  18. Stein RE, Riessman CK. The development of an impact-on-family scale: preliminary findings. Med Care. 1980;18:465–472
  19. Fong Lee D, Ryan S, Polgar J, Leibel G. Consumer-based approaches used in the development of an adaptive toileting system for children with positioning problems. PT/OT Ped. 2002;22:5–24
  20. Ryan S, Coiffe M, Rigby P, Barber A. Using research to develop an activity seat for young children. In: Proceedings of Canadian Sealing and Mobility Conference; 2002 Sept 12-13; Toronto (Canada). p 109-12.
  21. Brozek JL, Guyatt G, Schünemann HJ. How a well-grounded minimal important difference can enhance transparency of labelling claims and improve interpretation of a patient reported outcome measure. Health Qual Life Outcomes. 2006;4:69
  22. Norman GR, Sloan JA, Wyrwich KW. Interpretation of changes in health-related quality of life: the remarkable universality of half a standard deviation. Med Care. 2003;41:582–592
  23. Revicki D, Hays RD, Cella D, Sloan J. Recommended methods for determining responsiveness and minimally important differences for patient-reported outcomes. J Clin Epidemiol. 2008;61:102–109

 Supported by SickKids Foundation/Institute for Human Development, Child and Youth Health – Canadian Institutes of Health Research (grant no. XG 04-088).

 We certify that we have affiliations with an organization with a financial interest in the subject materials discussed in the manuscript. The seating devices described in this study were developed at Bloorview Kids Rehab in Toronto, ON, Canada. Bloorview receives royalties from the sale of these devices from Otto Bock HealthCare Canada Limited.

 Reprints are not available from the author.

PII: S0003-9993(08)01541-4

doi: 10.1016/j.apmr.2008.07.011

Archives of Physical Medicine and Rehabilitation
Volume 90, Issue 1 , Pages 27-33 , January 2009

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