A Comparison Between Self-Reported and Observed Activity Limitations in Adults With Neuromuscular Disorders
Abstract
Vandervelde L, Dispa D, Van den Bergh PY, Thonnard J-L. A comparison between self-reported and observed activity limitations in adults with neuromuscular disorders.
Objective
To investigate the agreement between the self-reported and examiner-reported difficulties of patients with neuromuscular disorders (NMDs) in performing daily activities at home.
Design
A comparison between 2 methods of administering a measurement instrument.
Setting
Neuromuscular reference center in a university hospital.
Participants
Adult patients (N=57) with diagnosed NMDs living at home.
Interventions
Not applicable.
Main Outcome Measure
The ACTIVLIM questionnaire.
Results
The intraclass correlation coefficient, model 2,1 (ICC2,1), between the measures was very good (ICC2,1=.87), indicating a good agreement between self-perceived and observed measures.
Conclusions
The use of ACTIVLIM as a self-reporting questionnaire is a valid method for assessing activity limitations in patients with NMD.
aRehabilitation and Physical Medicine Unit, Université catholique de Louvain, Brussels, Belgium
bNeuromuscular Center & Neurology Department, Cliniques Universitaires Saint-Luc, Brussels, Belgium
Reprint requests to Jean-Louis Thonnard, PhD, Université catholique de Louvain, Unité de Réadaptation et de Médecine Physique 53, Av Mounier (5375), B-1200 Brussels, Belgium
Supported by the Association Belge contre les Maladies NeuroMusculaires, the Fonds Spéciaux de Recherche of the Université catholique de Louvain, the Association Nationale d'Aide aux Handicapés, and the Fondation Saint-Luc.
No commercial party having a direct financial interest in the results of the research supporting this article has or will confer a benefit on the authors or on any organization with which the authors are associated.
ABSTRACT