Archives of Physical Medicine and Rehabilitation
Volume 88, Issue 6 , Pages 696-702 , June 2007

Youth and Young Adults With Cerebral Palsy: Their Use of Physician and Hospital Services

  • Nancy L. Young, PhD

      Affiliations

    • School of Human Kinetics, Laurentian University, Sudbury, ON, Canada
    • Child Health Evaluative Sciences, The Hospital for Sick Children, Toronto, ON, Canada
    • Institute for Clinical Evaluative Sciences, Toronto, ON, Canada
    • Corresponding Author InformationReprint requests to Nancy L. Young, PhD, Laurentian University, 935 Ramsey Lake Rd, Sudbury, ON P3E 2C6, Canada
    • ,
  • Thomas K. Gilbert, BSc

      Affiliations

    • Child Health Evaluative Sciences, The Hospital for Sick Children, Toronto, ON, Canada
    • ,
  • Anna McCormick, MD

      Affiliations

    • Ottawa Children’s Treatment Centre and The Children’s Hospital of Eastern Ontario, Ottawa, ON, Canada
    • ,
  • Anne Ayling-Campos, BScPT

      Affiliations

    • Child Health Evaluative Sciences, The Hospital for Sick Children, Toronto, ON, Canada
    • ,
  • Katherine Boydell, PhD

      Affiliations

    • Child Health Evaluative Sciences, The Hospital for Sick Children, Toronto, ON, Canada
    • ,
  • Mary Law, PhD

      Affiliations

    • School of Occupational Therapy, McMaster University, Hamilton, ON, Canada
    • ,
  • Darcy L. Fehlings, MD

      Affiliations

    • Bloorview Kids Rehab, Toronto, ON, Canada
    • ,
  • Shubhra Mukherjee, MD

      Affiliations

    • The Rehabilitation Institute of Chicago, Chicago, IL.
    • ,
  • John H. Wedge, MD

      Affiliations

    • Surgery, The Hospital for Sick Children, Toronto, ON, Canada
    • ,
  • Jack I. Williams, PhD

      Affiliations

    • Institute for Clinical Evaluative Sciences, Toronto, ON, Canada

References 

  1. Young NL, Steele C, Fehlings D, Jutai J, Olmsted N, Williams JI. Use of health care among adults with chronic and complex physical disabilities of childhood. Disabil Rehabil. 2005;27:1455–1460
  2. Kuban KC, Leviton A. Cerebral palsy. N Engl J Med. 1994;330:188–195
  3. Evans PM, Evans SJ, Alberman E. Cerebral palsy: why must we plan for survival. Arch Dis Child. 1990;65:1329–1333
  4. Hutton JL, Cooke T, Pharoah PO. Life expectancy in children with cerebral palsy. BMJ. 1994;309:431–435
  5. Hutton JL, Pharoah PO. Effects of cognitive, motor, and sensory disabilities on survival in cerebral palsy. Arch Dis Child. 2002;86:84–89
  6. Kudrjavcev T, Schoenberg BS, Kurland LT, Groover RV. Cerebral palsy: survival rates, associated handicaps, and distribution by clinical subtype (Rochester, MN, 1950-1976). Neurology. 1985;35:900–903
  7. Strauss D, Shavelle R. Life expectancy in cerebral palsy. [letter] Arch Dis Child. 2001;85:442
  8. Cathels BA, Reddihough DS. The health care of young adults with cerebral palsy. Med J Aust. 1993;159:444–446
  9. Andersson C, Mattsson E. Adults with cerebral palsy: a survey describing problems, needs, and resources, with special emphasis on locomotion. Dev Med Child Neurol. 2001;43:76–82
  10. Ando N, Ueda S. Functional deterioration in adults with cerebral palsy. Clin Rehabil. 2000;14:300–306
  11. Klingbeil H, Baer HR, Wilson PE. Aging with a disability. Arch Phys Med Rehabil. 2004;85(7 Suppl 3):S68–S73quiz S4-5
  12. Rapp CE, Torres MM. The adult with cerebral palsy. Arch Fam Med. 2000;9:466–472
  13. Murphy NA, Hoff C, Jorgensen T, Norlin C, Young PC. Cost and complications of hospitalization for children with cerebral palsy. Pediatr Rehabil. 2006;9:47–52
  14. Young NL, McCormick A, Mills W, et al. The transition study: a look at youth and adults with cerebral palsy, spina bifida, and acquired brain injury. Phys Occup Ther Pediatr. 2006;26:25–45
  15. Palisano R, Rosenbaum P, Walter S, Russell D, Wood E, Galuppi B. Development and reliability of a system to classify gross motor function in children with cerebral palsy. Dev Med Child Neurol. 1997;39:214–223
  16. Clavin JS, Antonelli R, Gupta VB, Buchanan G. The medical home. Pediatrics. 2002;110:184–186
  17. Cooley CW. Providing a primary care medical home for children and youth with cerebral palsy. Pediatrics. 2004;114:1106–1113
  18. Jaakkimainen L. Primary care visits: how many doctors do people see?. Hosp Q. 2001;5:17
  19. Bowes G, Sinnema G, Suris JC, Buhlmann U. Transition health services for youth with disabilities: a global perspective. J Adolesc Health. 1995;17:23–31
  20. Lam PY, Fitzgerald BB, Sawyer SM. Young adults in children’s hospitals: why are they there?. Med J Aust. 2005;182:381–384

 Supported by the Bloorview Children’s Hospital Foundation, the Canadian Institutes for Health Research (CIHR), and a Canada Research Chair in Rural and Northern Children’s Health from CIHR.No commercial party having a direct financial interest in the results of the research supporting this article has or will confer a benefit upon the author(s) or upon any organization with which the author(s) is/are associated.

PII: S0003-9993(07)00198-0

doi: 10.1016/j.apmr.2007.03.005

Archives of Physical Medicine and Rehabilitation
Volume 88, Issue 6 , Pages 696-702 , June 2007

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