Archives of Physical Medicine and Rehabilitation
Volume 87, Issue 2 , Pages 189-197 , February 2006

Participation Survey/Mobility: Psychometric Properties of a Measure of Participation for People With Mobility Impairments and Limitations

  • David B. Gray, PhD

      Affiliations

    • Department of Neurology, Washington University, St. Louis, MO.
    • Corresponding Author InformationReprint requests to David B. Gray, PhD, Washington University School of Medicine, Campus Box 8505, 4444 Forest Park, St. Louis, MO 63108
    • ,
  • Holly H. Hollingsworth, PhD

      Affiliations

    • Program in Occupational Therapy, Washington University, St. Louis, MO.
    • ,
  • Susan L. Stark, PhD

      Affiliations

    • Program in Occupational Therapy, Washington University, St. Louis, MO.
    • ,
  • Kerri A. Morgan, MS, OTR/L

      Affiliations

    • Program in Occupational Therapy, Washington University, St. Louis, MO.

References 

  1. Americans with Disabilities Act, 104 Stat 328, 42 USC §12101 et seq (1990).
  2. DeJong G . Independent living (from social movement to analytic paradigm) . Arch Phys Med Rehabil . 1979;60:435–446
  3. Frieden L , Cole JA . Independence (the ultimate goal of rehabilitation for spinal cord-injured persons) . Am J Occup Ther . 1985;39:734–739
  4. Ratzka AD . From patient to customer (direct payments for assistive technology for disabled people’s self-determination) . 2003; Paper presented to: The 7th European Conference for the Advancement of Assistive Technology; Aug 31-Sept 3; Dublin (Ireland). Available at: http://www.independentliving.org/docs6/ratzka200308b.html. Accessed June 24, 2004
  5. In:  Pope AM ,  Tarlov AR editor. Disability in America (toward a national agenda for prevention) . Washington (DC): Natl Acad Pr; 1991;
  6. In:  Brandt EN ,  Pope AM editor. Enabling America (assessing the role of rehabilitation science and engineering) . Washington (DC): Natl Acad Pr; 1997;
  7. National Center for Medical Rehabilitation Research . Research Plan for the National Center for Medical Rehabilitation Research . Washington (DC): National Institutes of Health; 1993;
  8. National Institute on Disability and Rehabilitation Research. Notice of proposed long-range plan for fiscal years 1999–2004. 63 Federal Register 57189 (1998).
  9. World Health Organization . International classification of functioning, disability and health . Geneva: WHO; 2001;
  10. Jencks SF , Cuerdom T , Burwen DR , et al.   Quality of medical care delivered to Medicare beneficiaries (a profile at state and national levels) . JAMA . 2000;284:1670–1676
  11. Dijkers M , Whiteneck GG , El-Jaroudi R . Measures of social outcomes in disability . Arch Phys Med Rehabil . 2000;81(Suppl 2):S63–S80
  12. Clauser SB , Bierman AS . Significance of functional status data for payment and quality . Health Care Financ Rev . 2001;24(3):1–12
  13. Verbrugge LM , Jette AM . The disablement process . Soc Sci Med . 1994;38:1–14
  14. MacKenzie EJ , Sacco WJ , Luchter S , et al.   Pennsylvania Study Group on Functional Outcomes Following Trauma. Validating the Functional Capacity Index as a measure of outcome following blunt multiple trauma . Qual Life Res . 2002;11:797–808
  15. Perenboom RJ , Chorus AM . Measuring participation according to the International Classification of Functioning, Disability and Health (ICF) . Disabil Rehabil . 2003;25:577–587
  16. World Health Organization . International classification of impairments, disabilities, and handicaps (a manual of classification relating to the consequences of disease) . Geneva: WHO; 1980;
  17. Gray DB , Hendershot GE . The ICIDH-2 (developments for a new era of outcomes research) . Arch Phys Med Rehabil . 2000;81(Suppl 2):S10–S14
  18. Whiteneck GG , Charlifue SW , Gerhart KA , Overholser JD , Richardson GN . Quantifying handicap (a new measure of long-term rehabilitation outcomes) . Arch Phys Med Rehabil . 1992;73:519–526
  19. Hunt SM , McKenna SP , McEwen J , Backett EM , Williams J , Papp E . A quantitative approach to perceived health status (a validation study) . J Epidemiol Community Health . 1980;34:281–286
  20. World Health Organization . World Health Organization Disability Assessment Schedule II . Geneva: WHO; 2004;
  21. Harwood RH , Rogers A , Dickinson E , Ebrahim S . Measuring handicap (the London Handicap Scale, a new outcome measure for chronic disease) . Qual Health Care . 1994;3:11–16
  22. Tate D , Forchheimer M , Maynard F , Dijkers M . Predicting depression and psychosocial distress in persons with spinal cord injury based on indicators of handicap . Am J Phys Med Rehabil . 1994;73:175–183
  23. Wood-Dauphinee SL , Opzoomer MA , Williams JL , Marchland B , Spitzer WO . Assessment of global function (the Reintegration to Normal Living Index) . Arch Phys Med Rehabil . 1988;69:583–590
  24. Fougeyrollas P , St. Michel G , Bergeron H , Cloudier R . The handicap creation process . ICIDH Int Network . 1991;4:8–15
  25. Fougeyrollas P , Noreau L , Bergeron H , Cloudier R , Dion S , St-Michel G . Social consequences of long term impairments and disabilities (conceptual approach and assessment of handicap) . Int J Rehabil Res . 1998;21:127–141
  26. Noreau L , Desrosiers J , Robichaud L , Fougeyrollas P , Rochette A , Viscogliosi C . Measuring social participation (reliability of the LIFE-H in older adults with disabilities) . Disabil Rehabil . 2004;25:346–352
  27. Australian Institute of Health and Welfare . ICF Australian user guide. Version 1.0 . Canberra: AIHW; 2003; Disability Series 2003 AIHW Cat. No. DIS 33.
  28. Blashfield RK . Models of classification as related to a taxonomy of learning disabilities . In:  Lyon R ,  Gray DB ,  Kavanagh JF ,  Krasnegor NA editor. Better understanding of learning disabilities . Baltimore: Brookes; 1993;p. 17–26
  29. Pfeiffer D . The ICIDH and the need for its revision . Disabil Soc . 1998;13:503–523
  30. Pfeiffer D . The devils are in the details; ICIDH-2 and the disability movement . Disabil Soc . 2000;15:1079–1082
  31. Brown SC . The classification of participation . Newsl Int Classification Impairments Disabil Handicaps . 1999;2(3):1–3
  32. Nordenfelt L . Action theory, disability and ICF . Disabil Rehabil . 2003;25:1075–1079
  33. Miles M . French experts’ cool gaze at new WHO disability classification . Disabil World . 2003;17: Available at: www.disabilityworld.org/01-03_03/resources/newwho.shtml. Accessed June 25, 2004
  34. Iezzoni LI . When walking fails (mobility problems of adults with chronic conditions) . Berkeley: Univ Cal Pr; 2003;
  35. Gray DB , Gould M , Bickenbach JE . Environmental barriers and disability . J Arch Plan Res . 2003;20:29–37
  36. Krueger RA . Focus groups (a practical guide for research) . Thousand Oaks: Sage; 1994;
  37. Krueger RA . Analyzing and reporting focus group results . London: Sage; 1997;
  38. Nosek MA , Fuhrer MJ , Howland CA . Independence among people with disabilities: II. Personal independence profile . Rehabil Counseling Bull . 1992;36:21–36
  39. Ware JE , Snow KK , Kosinski M , Gandek B . SF-36 health survey (manual and interpretation guide) . Boston: The Health Institute, New England Medical Center; 1993;
  40. SPSS for Windows, release 11.5.1 . Chicago: SPSS; 2002;
  41. Sawtooth software user manual (version 2.1) . Sequim: Sawtooth Software; 1997;
  42. Jette AM , Keysor JJ . Uses of evidence in disability outcomes and effectiveness research . Milbank Q . 2002;80:325–345
  43. Katz S , Ford AB , Moskowitz RW , Jackson BA , Jaffe MW . Studies of illness in the aged: the index of ADL: a standardized measure of biological and psychosocial function . JAMA . 1963;185:914–919
  44. Granger CV , Brownscheidle CM . Outcome measurement in medical rehabilitation . Int J Technol Assess Health Care . 1995;11:262–268
  45. Heinemann A , Linacre J , Wright B , Hamilton B , Granger C . Prediction of rehabilitation outcomes with disability measures . Arch Phys Med Rehabil . 1994;75:133–143
  46. Glass TA . Conjugating the “tenses” of function (discordance among hypothetical, experimental, and enacted function in older adults) . Gerontologist . 1998;38:101–112
  47. Ashberg K . Disability as a predictor of outcome for the elderly in a department of internal medicine . Scand J Soc Med . 1987;15:261–265
  48. Avlund K , Holstein BE , Mortensen EL , Schroll M . Active life in old age (combining measures of functional ability and social participation) . Dan Med Bull . 1999;46:345–349
  49. Executive summary . In: Proceedings of NIH Health-Related Quality of Life Assessment (Quality of Life Assessment: Practice, Problems, and Promise workshop) . 1990;p. 1–5 Oct 15-17; Bethesda (MD)
  50. Ware JE . Evaluating measures of general health concepts for use in clinical trials . Proceedings of NIH Health-Related Quality of Life Assessment: Quality of Life Assessment: Practice, Problems, and Promise workshop . 1990; Oct 15-17; Bethesda (MD)
  51. Gill TM , Feinstein AR . A critical appraisal of the quality-of-life measurements . JAMA . 1994;272:619–626
  52. Whiteneck GG . Measuring what matters (key rehabilitation outcomes) . Arch Phys Med Rehabil . 1994;75:1073–1076
  53. Noreau L , Shephard R . Spinal cord injury, exercise and quality of life . Sports Med . 1995;20:226–248
  54. Jette AM . Using health-related quality of life measures in physical therapy outcomes research . Phys Ther . 1993;73:528–537
  55. Meyers AR , Andresen EM . Enabling our instruments (accommodation, universal design, and access to participation in research) . Arch Phys Med Rehabil . 2000;81(Suppl 2):S5–S9
  56. Gross BH , Hahn H . Developing issues in the classification of mental and physical disabilities . J Disabil Policy Stud . 2004;15:130–134

 Supported by the Centers for Disease Control and Prevention (grant no. R04/CCR714134), the Missouri Department of Public Health Contract (grant no. C003019001), and the National Institutes of Health (grant no. R21 HD45885-01).No commercial party having a direct financial interest in the results of the research supporting this article has or will confer a benefit upon the author(s) or upon any organization with which the author(s) is/are associated.

PII: S0003-9993(05)01272-4

doi: 10.1016/j.apmr.2005.09.014

Archives of Physical Medicine and Rehabilitation
Volume 87, Issue 2 , Pages 189-197 , February 2006

Article Tools

* Image Usage & Resolution